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本文引用的文献

1
Randomized trial showed that an "embedded" survey strategy optimized authorization rates compared with two "after survey" strategies in veterans with PTSD.随机试验表明,与 PTSD 退伍军人的两种“调查后”策略相比,“嵌入式”调查策略优化了授权率。
J Clin Epidemiol. 2010 Jun;63(6):665-71. doi: 10.1016/j.jclinepi.2009.12.006. Epub 2010 Mar 21.
2
Survey-related experiential and attitudinal correlates of future health survey participation: results of a statewide survey.未来健康调查参与度与调查相关的体验及态度关联因素:一项全州范围调查的结果
Mayo Clin Proc. 2008 Dec;83(12):1358-63. doi: 10.1016/S0025-6196(11)60784-2.
3
Randomized trial showed requesting medical records with a survey produced a more representative sample than requesting separately.随机试验表明,在调查中要求提供病历比单独要求能产生更具代表性的样本。
J Clin Epidemiol. 2008 Oct;61(10):1028-35. doi: 10.1016/j.jclinepi.2007.11.015. Epub 2008 Jun 11.
4
The HIPAA authorization form and effects on survey response rates, nonresponse bias, and data quality: a randomized community study.《健康保险流通与责任法案》授权书及其对调查回复率、无应答偏差和数据质量的影响:一项随机社区研究。
Med Care. 2007 Oct;45(10):959-65. doi: 10.1097/MLR.0b013e31805468b0.
5
The impact of HIPAA authorization on willingness to participate in clinical research.《健康保险流通与责任法案》授权对参与临床研究意愿的影响。
Ann Epidemiol. 2007 Nov;17(11):899-905. doi: 10.1016/j.annepidem.2007.05.006. Epub 2007 Aug 6.
6
Do characteristics of HIPAA consent forms affect the response rate?《健康保险流通与责任法案》(HIPAA)同意书的特征会影响回复率吗?
Med Care. 2007 Jan;45(1):100-3. doi: 10.1097/01.mlr.0000241062.79855.35.
7
Does waiver of written informed consent from the institutional review board affect response rate in a low-risk research study?机构审查委员会放弃书面知情同意是否会影响低风险研究中的应答率?
J Investig Med. 2006 May;54(4):174-9. doi: 10.2310/6650.2006.05031.
8
The Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy rule: implications for clinical research.1996年《健康保险流通与责任法案》(HIPAA)隐私规则:对临床研究的影响
Annu Rev Med. 2006;57:575-90. doi: 10.1146/annurev.med.57.121304.131257.
9
Procedures that assess inconsistency in meta-analyses can assess the likelihood of response bias in multiwave surveys.评估元分析中不一致性的程序可以评估多波调查中反应偏差的可能性。
J Clin Epidemiol. 2005 Aug;58(8):856-8. doi: 10.1016/j.jclinepi.2004.11.027.
10
Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndrome.《健康保险流通与责任法案》隐私规则对急性冠状动脉综合征患者登记处数据收集的潜在影响。
Arch Intern Med. 2005 May 23;165(10):1125-9. doi: 10.1001/archinte.165.10.1125.

医疗保险携带和责任法案(HIPAA)授权和调查无回应偏差。

Health Insurance Portability and Accountability Act (HIPAA) authorization and survey nonresponse bias.

机构信息

Division of Health Care Policy and Research, Department of Health Sciences Research, Survey Research Center, Mayo Clinic, Rochester, MN 55905, USA.

出版信息

Med Care. 2011 Apr;49(4):365-70. doi: 10.1097/MLR.0b013e318202ada0.

DOI:10.1097/MLR.0b013e318202ada0
PMID:21368682
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3179247/
Abstract

OBJECTIVES

To extend earlier work (Beebe et al, Med Care. 2007;45:959-965) that demonstrated Health Insurance Portability and Accountability Act authorization form (HAF) introduced potential nonresponse bias (toward healthier respondents).

RESEARCH DESIGN

The sample frame from the earlier experiment was linked to administrative medical record data, enabling the comparison of background and clinical characteristics of each set of respondents (HAF and No HAF) to the sample frame.

SUBJECTS

A total of 6939 individuals residing in Olmsted County, Minnesota who were mailed a survey in September 2005 assessing recent gastrointestinal symptoms with an embedded HAF experiment comprised the study population.

MEASURES

The outcomes of interest were response status (survey returned vs. not) by HAF condition (randomized to receive HAF or not). Sociodemographic indicators included gender, age, and race. Health status was measured using the severity-weighted Charlson Score and utilization was measured using emergency room visits, hospital admissions, clinic office visits, and procedures.

RESULTS

Younger and nonwhite residents were under-represented and those with more clinical office visits were over-represented in both conditions. Those responding to the survey in the HAF condition were significantly more likely to be in poor health compared with the population (27.3% with 2+ comorbidities vs. 24.6%, P=0.02).

CONCLUSIONS

The HAF did not influence the demographic composition of the respondents. However, in contrast to earlier findings based on self-reported health status (Beebe et al, Med Care. 2007;45:959-965), responders in the HAF condition were slightly sicker than in the non-HAF condition. The HAF may introduce a small amount of measurement error by suppressing reports of poor health. Furthermore, researchers should consider the effect of the HAF on resultant precision, respondent burden, and available financial resources.

摘要

目的

扩展早期工作(Beebe 等人,医疗保健。2007 年;45:959-965),证明健康保险可携带性和问责法案授权表(HAF)引入了潜在的无应答偏差(对更健康的应答者有利)。

研究设计

早期实验的样本框架与行政医疗记录数据相关联,使每个应答者组(HAF 和无 HAF)与样本框架的背景和临床特征进行比较成为可能。

研究对象

2005 年 9 月,明尼苏达州奥姆斯特德县的 6939 名居民邮寄了一份调查,评估最近的胃肠道症状,其中嵌入了 HAF 实验,构成了研究人群。

测量

感兴趣的结果是 HAF 条件(随机接受 HAF 或不接受 HAF)下的应答状态(调查返回与未返回)。社会人口指标包括性别、年龄和种族。健康状况用严重加权 Charlson 评分衡量,利用急诊室就诊、住院、诊所就诊和程序衡量利用率。

结果

年轻和非白人居民代表性不足,在两种情况下,临床就诊次数较多的居民代表性过高。在 HAF 条件下应答调查的居民与人群相比,健康状况明显较差(2 种以上合并症的比例为 27.3%,而 24.6%,P=0.02)。

结论

HAF 并未影响应答者的人口构成。然而,与基于自我报告健康状况的早期发现(Beebe 等人,医疗保健。2007 年;45:959-965)相反,HAF 条件下的应答者比非 HAF 条件下的应答者稍微病得更重。HAF 可能通过抑制对健康状况不佳的报告引入少量测量误差。此外,研究人员应考虑 HAF 对结果精度、应答者负担和可用财务资源的影响。