Department of Clinical Neurophysiology, Poole Hospital, Poole, United Kingdom.
Top Stroke Rehabil. 2011 Jan-Feb;18(1):74-8. doi: 10.1310/tsr1801-74.
This essay contrasts the responses of persons with stroke described by Kaufman with the reflections of persons with spinal cord injury (SCI). It is suggested that, over the last decade or so, mainstream medicine has become less reductionist and more humane in focus. Many with SCI become reconciled to their new bodies, though this may take years. It is not clear whether this apparent difference in the responses of those with stroke, related by Kaufman, reflects their older age or other factors. Perhaps it takes longer than 2 to 3 years for some people to become reconciled to profound alterations in their embodiment. Medical and social models of impairment are discussed. The effects of personal reductions in function may be lessened in significance through appropriate environmental adaptations and changes in social attitudes. In agreement with Kaufman, the importance of an effective personal assistant/employer relationship is illustrated in relation to those with quadriplegia. Overall the perspective of persons with SCI is not as pessimistic as that of those with stroke, as related by Kaufman. However, her plea for a deeper and richer exploration of the lived experience of chronic impairment is supported for many reasons.
这篇文章对比了 Kaufman 所描述的中风患者的反应和脊髓损伤（SCI）患者的反应。有人认为，在过去的十年左右，主流医学在关注焦点上变得不那么还原论，而更有人道主义色彩。许多 SCI 患者会接受他们的新身体，尽管这可能需要数年时间。尚不清楚 Kaufman 所描述的中风患者反应的这种明显差异是否反映了他们的年龄较大或其他因素。也许有些人需要 2 到 3 年以上的时间才能接受身体深刻变化。讨论了损伤的医学和社会模式。通过适当的环境适应和社会态度的改变，可以减轻个人功能减少的影响的重要性。与 Kaufman 一致，在与四肢瘫痪患者相关的情况下，说明了有效的个人助理/雇主关系的重要性。总的来说，与 Kaufman 所描述的中风患者相比，SCI 患者的观点并不那么悲观。然而，出于多种原因，她呼吁更深入、更丰富地探索慢性损伤的生活体验，这一观点得到了支持。
