Research Unit, Galdakao-Usansolo Hospital, 9th Floor, Barrio Labeaga, s/n, Galdakao, 48960, Bizkaia, Spain.
Qual Life Res. 2011 Nov;20(9):1359-69. doi: 10.1007/s11136-011-9873-z. Epub 2011 Mar 4.
To analyse health-related quality of life (HRQoL) and its associated social and clinical variables among a sample of caregivers of patients with eating disorders (ED).
It is a cross-sectional study involving 145 patients receiving outpatient treatment for an ED and 246 related caregivers. ED patients completed two self-administered questionnaires: the Health-Related Quality of Life in ED-short form and Eating Attitudes Test-26 questionnaires. Caregivers completed four self-administered questionnaires: the Short Form-12, Involvement Evaluation Questionnaire-EU version, Hospital Anxiety and Depression Scale and Anorectic Behaviour Observation Scale. Descriptive statistics, ANOVA, Chi-square and Fisher's exact test were applied to examine the inter-variable relationships.
Caregivers had low scores on the mental health component of the SF-12 (P < 0.05). Low SF-12 scores were associated with a greater perceived care burden in the stress domains in interpersonal relationships (beta = -0.360, SE = 0.162, P = 0.029) and the need to urge their sick relatives to undertake healthful activities (beta = -0.340, SE = 0.155, P = 0.031).
Low scores in the mental health domain of HRQoL among caregivers of patients with EDs indicate the need to pay particular attention to caregivers' emotional status, especially among mothers and partners.
分析一组饮食失调症（ED）患者照顾者的健康相关生活质量（HRQoL）及其相关社会和临床变量。
这是一项横断面研究，涉及 145 名接受 ED 门诊治疗的患者和 246 名相关照顾者。ED 患者完成了两份自我管理问卷：ED 短表健康相关生活质量问卷和饮食态度测试 26 问卷。照顾者完成了四份自我管理问卷：简短表单 12 项、参与评估问卷-EU 版、医院焦虑和抑郁量表以及厌食行为观察量表。应用描述性统计、方差分析、卡方检验和 Fisher 精确检验来检查变量之间的关系。
照顾者在 SF-12 的心理健康分量表上得分较低（P<0.05）。SF-12 得分较低与人际关系中的压力领域感知到的照顾负担更大有关（β=-0.360，SE=0.162，P=0.029），以及需要敦促生病的亲属进行健康活动（β=-0.340，SE=0.155，P=0.031）。
ED 患者照顾者的 HRQoL 心理健康领域得分较低表明需要特别关注照顾者的情绪状态，尤其是母亲和伴侣。
