Department of Psychiatry, Galdakao-Usansolo Hospital, Barrio Labeaga s/n, Galdakao, 48960, Bizkaia, Spain.
Soc Psychiatry Psychiatr Epidemiol. 2013 Jan;48(1):151-61. doi: 10.1007/s00127-012-0525-6. Epub 2012 Jun 22.
Eating disorders (EDs) in a close relative can be particularly stressful for family members.
To assess the perceived burden of caregivers of patients with EDs and to identify demographic and clinical variables that could predict this burden.
We conducted a cross-sectional study involving 145 ED patients and 246 related caregivers. ED patients completed the Health-Related Quality of Life in ED-short form, the Hospital Anxiety and Depression Scale, and the Short Form-12. Caregivers completed the Involvement Evaluation Questionnaire-EU version, the Short Form-12, the Hospital Anxiety and Depression Scale, and the Anorectic Behaviour Observation Scale. Descriptive statistics, ANOVA, Chi-square, and Fisher's exact test were applied to examine the inter-variable relationships.
A high burden of caregiving was associated with being divorced (β = 14.23, SE = 3.88; p = 0.001), having a low level of education (β = 4.70, SE = 1.96; p = 0.02), having high levels of anxiety (β = 5.45, SE = 2.13; p = 0.01) or depression (β = 5.74, SE = 2.80; p = 0.04), and caring for a relative with a low physical quality of life (β = 5.91, SE = 1.78; p = 0.002).
Evaluating family caregivers of patients with ED for risk factors for increased caregiver burden and offering them assistance could reduce their perceived burden of caregiving.
近亲患有饮食失调症（ED）可能会给家庭成员带来特别大的压力。
评估 ED 患者照顾者的感知负担，并确定可能预测这种负担的人口统计学和临床变量。
我们进行了一项横断面研究，涉及 145 名 ED 患者和 246 名相关照顾者。ED 患者完成了 ED 短表单健康相关生活质量量表、医院焦虑和抑郁量表以及简短形式 12 项健康调查量表。照顾者完成了参与评估问卷-EU 版本、简短形式 12 项健康调查量表、医院焦虑和抑郁量表以及厌食行为观察量表。应用描述性统计、方差分析、卡方检验和 Fisher 精确检验来检查变量之间的关系。
高照顾负担与离婚（β=14.23，SE=3.88；p=0.001）、教育程度低（β=4.70，SE=1.96；p=0.02）、焦虑程度高（β=5.45，SE=2.13；p=0.01）或抑郁（β=5.74，SE=2.80；p=0.04）以及照顾生活质量低的亲属有关。
评估 ED 患者的家庭照顾者的负担增加的风险因素，并为他们提供帮助，可以减轻他们的照顾负担。
