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新加坡自闭症谱系障碍青少年的活动和参与:基于 ICF 的工具的研究结果。

The activities and participation of adolescents with autism spectrum disorders in Singapore: findings from an ICF-based instrument.

机构信息

National Institute of Education, Nanyang Technological University, Singapore.

出版信息

J Intellect Disabil Res. 2011 Aug;55(8):790-800. doi: 10.1111/j.1365-2788.2011.01397.x. Epub 2011 Mar 6.

DOI:10.1111/j.1365-2788.2011.01397.x
PMID:21375640
Abstract

BACKGROUND

This study sought to describe the activities and participation of adolescents with autism spectrum disorders (ASD) in Singapore and to examine the suitability of the Activity and Participation component of the International Classification of Functioning, Disability and Health for achieving this purpose. This information may guide the development of intervention programmes for adolescents and adults as well as the provision of a means to document meaningful outcomes.

METHODS

Parents of 20 adolescents with ASD attending special schools in Singapore were interviewed using the Vineland Adaptive Behavioural Scales - Second Edition and the Activities and Participation Rating Scale (APRS), which was developed for this study.

RESULTS

The adolescents with ASD were rated to have more difficulties with participation than with the engagement of activities. Individual domain analyses indicate no difficulties with mobility and mild difficulties with self-care. The performance of general tasks and demands were rated as less problematic than domestic, major life areas, communication and interpersonal interactions. The adolescents with ASD were rated to have more difficulties in communication and community environments than in at home. In addition, analysis of associations between the APRS and Vineland Adaptive Behavioural Scales - Second Edition reveal a pattern of strong relationships between sub-tests.

CONCLUSION

This study highlights the imperative for researchers and practitioners alike to develop a focus on strengths, generalisation and the quality of life of adolescents with ASD. The APRS also shows promise in helping document outcomes for adolescents with ASD in Asia and further development of this instrument is needed.

摘要

背景

本研究旨在描述新加坡自闭症谱系障碍(ASD)青少年的活动和参与情况,并探讨国际功能、残疾和健康分类的活动和参与部分是否适合实现这一目标。这些信息可以为青少年和成年人的干预计划的制定以及有意义的结果记录提供指导。

方法

使用第二版 Vineland 适应行为量表和专为这项研究开发的活动和参与评定量表(APRS)对新加坡 20 名特殊学校 ASD 青少年的家长进行访谈。

结果

评估表明,ASD 青少年在参与方面比在活动参与方面更困难。个体领域分析表明,他们在移动方面没有困难,在自我护理方面只有轻微的困难。一般任务和需求的表现被认为比家庭、主要生活领域、沟通和人际互动更容易。与在家中相比,青少年在沟通和社区环境中被评估为有更多的困难。此外,APRS 与第二版 Vineland 适应行为量表之间的关联分析显示,子测试之间存在强烈关系的模式。

结论

本研究强调了研究人员和从业人员都需要关注自闭症谱系障碍青少年的优势、泛化和生活质量。APRS 也显示出有助于记录亚洲 ASD 青少年结果的潜力,需要进一步开发这种工具。

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