Duke Clinical Research Institute, Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Durham, NC 27715, USA.
Psychooncology. 2012 Jun;21(6):594-601. doi: 10.1002/pon.1947. Epub 2011 Mar 10.
We studied patients' experiences with oncology providers regarding communication about sexual issues during and after treatment for cancer.
During development of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Sexual Function measure, we collected focus group and survey data on communication with oncology professionals about sexual problems. We conducted 16 focus groups with patients and survivors (n = 109) and analyzed the discussions for major themes, including experiences discussing sex during oncology visits. During testing of the PROMIS Sexual Function measure, we assessed experiences discussing sexual problems with oncology professionals (n = 819) and measured bivariate associations between asking for information from clinicians and sexual function and satisfaction with sex life.
Most patients and survivors (74%) thought that discussions with oncology professionals about sexual problems were important, but whether they had ever received information about sexual function from a provider varied by cancer type (23% lung, 29% breast, 39% colorectal, and 79% prostate). Those who had asked an oncology professional about sexual problems had significantly greater interest in sexual activity as well as more sexual dysfunction.
Sexual problems are a widespread concern among patients and survivors, but there is much variation in experiences of communication about sexual issues, and many patients do not receive the information they need from their oncology providers. There are large differences in sexual function between patients who do and do not ask providers about sexual problems. Sexual health has yet to be fully integrated into oncology care, even for cancers involving sex organs.
我们研究了患者在癌症治疗期间和治疗后与肿瘤医生就性问题进行沟通的体验。
在开发患者报告结局测量信息系统（PROMIS(®)）性功能量表的过程中，我们收集了关于与肿瘤专业人员就性问题进行沟通的焦点小组和调查数据。我们进行了 16 次患者和幸存者的焦点小组（n = 109），并对讨论进行了主要主题分析，包括在肿瘤就诊期间讨论性问题的经验。在 PROMIS 性功能量表的测试过程中，我们评估了与肿瘤专业人员讨论性问题的经验（n = 819），并测量了向临床医生询问信息与性功能和性生活满意度之间的双变量关联。
大多数患者和幸存者（74%）认为与肿瘤专业人员讨论性问题很重要，但他们是否曾从提供者那里获得过性功能信息因癌症类型而异（23%的肺癌、29%的乳腺癌、39%的结直肠癌和 79%的前列腺癌）。那些向肿瘤专业人员询问过性问题的患者对性行为的兴趣明显更高，性功能障碍也更多。
性问题是患者和幸存者普遍关注的问题，但沟通性问题的体验存在很大差异，许多患者没有从他们的肿瘤医生那里获得所需的信息。是否向提供者询问性问题的患者之间的性功能存在很大差异。即使涉及性器官的癌症，性健康也尚未完全纳入肿瘤学治疗。
