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Equivalence of electronic and paper-and-pencil administration of patient-reported outcome measures: a meta-analytic review.患者报告结局测量的电子管理与纸笔管理的等效性：一项荟萃分析综述。
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Patient-reported outcomes in cancer: a review of recent research and policy initiatives.癌症患者报告的结局：近期研究与政策举措综述
CA Cancer J Clin. 2007 Sep-Oct;57(5):278-300. doi: 10.3322/CA.57.5.278.
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Health technology assessment in Canada: diversity and evolution.加拿大的卫生技术评估：多样性与演变
Med J Aust. 2007 Sep 3;187(5):286-8. doi: 10.5694/j.1326-5377.2007.tb01245.x.
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Health technology assessment in England: assessment and appraisal.英国的卫生技术评估：评估与评价。
Med J Aust. 2007 Sep 3;187(5):283-5. doi: 10.5694/j.1326-5377.2007.tb01244.x.
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Health technology assessment in Australia: challenges ahead.
Med J Aust. 2007 Sep 3;187(5):262-4. doi: 10.5694/j.1326-5377.2007.tb01238.x.
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General population and cancer patient norms for the Functional Assessment of Cancer Therapy-General (FACT-G).癌症治疗功能评估通用量表（FACT-G）的一般人群和癌症患者常模。
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Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers.患者激活度量表（PAM）的开发：对患者及消费者的激活进行概念化和测量
Health Serv Res. 2004 Aug;39(4 Pt 1):1005-26. doi: 10.1111/j.1475-6773.2004.00269.x.
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Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.在肿瘤学常规实践中测量生活质量可改善医患沟通并提升患者幸福感：一项随机对照试验。
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使用平板电脑收集具有研究质量的患者报告数据，以提高医疗保健效率和质量。

Improving health care efficiency and quality using tablet personal computers to collect research-quality, patient-reported data.

作者信息

Abernethy Amy P, Herndon James E, Wheeler Jane L, Patwardhan Meenal, Shaw Heather, Lyerly H Kim, Weinfurt Kevin

机构信息

Division of Medical Oncology, Department of Medicine, Duke University Medical Center, Box 3436, Durham, NC 27710, USA.

出版信息

Health Serv Res. 2008 Dec;43(6):1975-91. doi: 10.1111/j.1475-6773.2008.00887.x. Epub 2008 Aug 28.

DOI:10.1111/j.1475-6773.2008.00887.x
PMID:18761678
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2613994/
Abstract

OBJECTIVE

To determine whether e/Tablets (wireless tablet computers used in community oncology clinics to collect review of systems information at point of care) are feasible, acceptable, and valid for collecting research-quality data in academic oncology. DATA/SETTING: Primary/Duke Breast Cancer Clinic.

DESIGN

Pilot study enrolling sample of 66 breast cancer patients.

METHODS

Data were collected using paper- and e/Tablet-based surveys: Functional Assessment of Cancer Therapy General, Functional Assessment of Cancer Therapy-Breast, MD Anderson Symptom Inventory, Functional Assessment of Chronic Illness Therapy (FACIT), Self-Efficacy; and two questionnaires: feasibility, satisfaction.

PRINCIPAL FINDINGS

Patients supported e/Tablets as: easy to read (94 percent), easy to respond to (98 percent), comfortable weight (87 percent). Generally, electronic responses validly reflected responses provided by standard paper data collection on nearly all subscales tested.

CONCLUSIONS

e/Tablets offer a valid, feasible, acceptable method for collecting research-quality, patient-reported outcomes data in outpatient academic oncology.

摘要

目的

确定电子平板电脑（社区肿瘤诊所用于在护理点收集系统信息回顾的无线平板电脑）在学术肿瘤学中收集研究质量数据是否可行、可接受且有效。数据/地点：初级/杜克乳腺癌诊所。

设计

对66名乳腺癌患者样本进行的试点研究。

方法

使用纸质和电子平板电脑调查问卷收集数据：癌症治疗功能评估通用版、癌症治疗功能评估-乳腺癌版、MD安德森症状量表、慢性病治疗功能评估（FACIT）、自我效能感；以及两份问卷：可行性问卷、满意度问卷。

主要发现

患者支持电子平板电脑，认为其：易于阅读（94%）、易于作答（98%）、重量合适（87%）。总体而言，电子回复在几乎所有测试子量表上均有效反映了标准纸质数据收集所提供的回复。

结论

电子平板电脑为在门诊学术肿瘤学中收集研究质量的、患者报告的结局数据提供了一种有效、可行且可接受的方法。