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一项针对多发性硬化症成人自我管理干预措施的范围综述。

A scoping review of self-management interventions for adults with multiple sclerosis.

机构信息

Department of Biomedical Engineering, Department of Physical Medicine and Rehabilitation, Cleveland Clinic Lerner Research Institute, 9500 Euclid Ave, ND-20, Cleveland, OH 44195, USA.

出版信息

PM R. 2011 Mar;3(3):251-62. doi: 10.1016/j.pmrj.2010.11.011.

DOI:10.1016/j.pmrj.2010.11.011
PMID:21402370
Abstract

The purpose of this scoping review is to identify self-management tasks and skills that are being taught in existing interventions for persons with multiple sclerosis and to describe intervention strategies used to facilitate the learning of self-management tasks and skills. Multiple strategies were used to search for studies published or in press between 1980 and 2008 that evaluated self-management interventions. The main exclusion criteria were case studies, inadequate description of the intervention, and traditional clinical patient education interventions. Two independent coders categorized the interventions by using Lorig and Holman's self-management framework and Abraham and Michie's taxonomy of behavior change techniques. Twenty-seven interventions were identified from 34 articles. Common intervention topics included fatigue management (n = 12), coping, depression, and stress management (n = 10), and medication management (n = 6). Also, no 2 interventions used the same delivery format to implement the same combination of intervention strategies. Furthermore, markedly different intervention strategies were used to improve the same outcomes. These results highlight a need to systematically test intervention strategies one at a time, or in a clear specified combination, as well as compare existing interventions to determine which are most effective in supporting persons with multiple sclerosis to learn and incorporate self-management tasks and skills.

摘要

本范围综述的目的是确定在现有的多发性硬化症患者自我管理干预措施中所教授的自我管理任务和技能,并描述用于促进自我管理任务和技能学习的干预策略。为了寻找发表于 1980 年至 2008 年间或正在出版的评估自我管理干预措施的研究,我们使用了多种策略。主要的排除标准是病例研究、干预措施描述不充分以及传统的临床病人教育干预。两位独立的编码员使用 Lorig 和 Holman 的自我管理框架以及 Abraham 和 Michie 的行为改变技术分类法对干预措施进行了分类。从 34 篇文章中确定了 27 项干预措施。常见的干预主题包括疲劳管理(n = 12)、应对、抑郁和压力管理(n = 10)以及药物管理(n = 6)。此外,没有 2 项干预措施使用相同的交付格式来实施相同的干预策略组合。此外,截然不同的干预策略被用于改善相同的结果。这些结果强调需要系统地一次测试一种干预策略,或者以明确规定的组合进行测试,以及比较现有的干预措施,以确定哪些措施最有效地支持多发性硬化症患者学习和采用自我管理任务和技能。

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