Matthie Nadine, Jenerette Coretta
Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA.
School of Nursing, The University of North Carolina at Chapel Hill, Chapel Hill, USA.
J Sick Cell Dis Hemoglobinopathies. 2017 May;2017:76-87.
Because self-management is central to sickle cell disease (SCD) management, this descriptive study of 18 young adults with SCD, ages 19-39, was conducted to understand their pain experience and to identify the specific home activities they use for pain prevention and management prior to care-seeking. Participants completed two baseline surveys and one semi-structured, individual interview. Content analysis of the interview transcripts yielded two themes: difficulty in describing pain and living with pain. Participants used pharmacological and non-pharmacological strategies to alleviate pain and avoid disease complications but report barriers to using these strategies. Healthcare providers should use study findings to provide appropriate care to and improve pain outcomes for young adults with SCD. In addition, interventions aimed at addressing barriers and optimizing self-management are needed.
由于自我管理是镰状细胞病（SCD）管理的核心，因此开展了这项针对18名年龄在19至39岁之间的SCD青年成人的描述性研究，以了解他们的疼痛经历，并确定他们在寻求治疗之前用于预防和管理疼痛的具体家庭活动。参与者完成了两项基线调查和一次半结构化的个人访谈。对访谈记录的内容分析产生了两个主题：描述疼痛困难和与疼痛共存。参与者使用药物和非药物策略来减轻疼痛并避免疾病并发症，但报告了使用这些策略的障碍。医疗保健提供者应利用研究结果为患有SCD的青年成人提供适当的护理并改善疼痛结局。此外，需要采取旨在消除障碍和优化自我管理的干预措施。
