Crain L S, Mangravite D N, Allport R, Schour M, Biakanja K
Department of Pediatrics, University of California, San Francisco, School of Medicine.
West J Med. 1990 Apr;152(4):434-8.
In an attempt to document the trend toward a more seriously ill and medically needy population of children in California state developmental centers, we studied the medical status and health care needs of the pediatric and young adult population (birth to 22 years of age) residing in all acute care and skilled nursing care units in developmental centers in 1988. All children in California's state developmental centers are severely to profoundly mentally retarded and chronically disabled, and many have serious health problems. Of the 865 children in 5 developmental centers, 441 (51%) resided in acute and skilled nursing care units and were technology dependent (Office of Technology Assessment classification). We suspect that our findings (ethical and quality-of-care issues, staffing, licensing mandates, cost-of-care considerations) reflect the rapidly expanding population of children with special health care needs and may be important in planning for services in other states as well as in California.
为了记录加利福尼亚州发育中心中病情更严重且有医疗需求的儿童群体的发展趋势,我们于1988年研究了居住在发育中心所有急症护理和专业护理单元中的儿童及青少年(出生至22岁)的医疗状况和医疗保健需求。加利福尼亚州发育中心的所有儿童都患有严重至极重度智力障碍且长期残疾,许多儿童还存在严重的健康问题。在5个发育中心的865名儿童中,441名(51%)居住在急症和专业护理单元,并且依赖技术(技术评估办公室分类)。我们怀疑我们的研究结果(伦理和护理质量问题、人员配备、许可规定、护理成本考量)反映了有特殊医疗保健需求的儿童群体在迅速扩大,并且对于加利福尼亚州以及其他州的服务规划可能也很重要。