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土耳其癌症患者的绝望感、孤独感与家庭感知社会支持的关系。

Relationship between hopelessness, loneliness, and perceived social support from family in Turkish patients with cancer.

机构信息

Department of Nursing, School of Health, Gaziantep University, Gaziantep TR-27310, Turkey.

出版信息

Support Care Cancer. 2012 Apr;20(4):733-9. doi: 10.1007/s00520-011-1137-5. Epub 2011 Apr 1.

Abstract

PURPOSE

Life-threatening diseases such as cancer can create hopelessness and loneliness by altering the lifestyle of the patient and family. Perceived social support may facilitate coping with illness. The aim of this study was to investigate the relationship between hopelessness, loneliness, and perceived social support from family in Turkish patients with cancer.

METHODS

This study involved 188 patients with cancer. The data were collected using a questionnaire that determined the sociodemographic features, the Beck Hopelessness Scale, the UCLA Loneliness Scale, and Perceived Social Support from Family Scale. Data were evaluated with Mann-Whitney U and Kruskall-Wallis and Spearman product moment correlation coefficients.

RESULTS

The mean scores of hopelessness (0-20), loneliness (20-80), and perceived social support from family (0-20) were 6.8 ± 0.4, 35.8 ± 0.8, and 15.2 ± 0.2, respectively. A statistically positive relationship existed between hopelessness and loneliness. A negative relationship between loneliness, hopelessness, and perceived social support from family was found (p < 0.05). Cancer patients who had family history of cancer and long disease duration had low social support from family. The hopelessness score was significantly higher in female, older, illiterate, and village-dwelling cancer patients.

CONCLUSIONS

In cases where the perceived social support levels were determined to be high; the cancer patients were not hopeless or lonely. We found that decreased social support was associated with increased loneliness and hopelessness. The present evaluation indicates that although the levels of perceived social support of patients from their families may be sufficient to prevent loneliness or hopelessness, these parameters need to be evaluated periodically to maintain the patients' well-being.

摘要

目的

癌症等危及生命的疾病会改变患者和家庭的生活方式,从而导致绝望和孤独。感知到的社会支持可能有助于应对疾病。本研究旨在调查土耳其癌症患者的绝望感、孤独感和家庭感知社会支持之间的关系。

方法

本研究纳入了 188 名癌症患者。使用问卷收集数据,该问卷确定了社会人口统计学特征、贝克绝望量表、加州大学洛杉矶分校孤独量表和家庭感知社会支持量表。使用 Mann-Whitney U 和 Kruskall-Wallis 和 Spearman 积矩相关系数对数据进行评估。

结果

绝望感(0-20 分)、孤独感(20-80 分)和家庭感知社会支持(0-20 分)的平均得分分别为 6.8±0.4、35.8±0.8 和 15.2±0.2。绝望感和孤独感之间存在统计学上的正相关关系。孤独感、绝望感和家庭感知社会支持之间存在负相关关系(p<0.05)。有癌症家族史和疾病病程较长的癌症患者家庭感知社会支持较低。女性、年龄较大、文盲和农村居住的癌症患者的绝望感评分显著较高。

结论

在确定感知社会支持水平较高的情况下,癌症患者不会感到绝望或孤独。我们发现,社会支持减少与孤独感和绝望感增加有关。目前的评估表明,尽管患者从家庭获得的感知社会支持水平足以预防孤独或绝望,但这些参数需要定期评估以维持患者的幸福感。

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