Eur J Cancer Care (Engl). 2011 Nov;20(6):738-46. doi: 10.1111/j.1365-2354.2011.01246.x. Epub 2011 Apr 11.
Cancer of the vulva is a rare condition that has been subject to limited research with a paucity of studies into the impact of this disease. Although the physical effects may readily be described, little is known about the psychological, emotional and social impact of this condition. To increase insights, a qualitative research study was undertaken to explore the experiences of women with vulval cancer living in the UK. An interpretive phenomenological approach based on the work of Heidegger and Van Manen was used to frame the study in which 13 women under 50 years of age were interviewed between 6 months and 5 years after their surgery. Data were analysed using framework analysis described by Ritchie and Spencer. This article describes the concept of aloneness which emerged from the data. This includes consideration of the women's sense of isolation due to the geographical distance between the woman's home and the hospital, and a sense of separation as they described their loss of sexual function and ability to enjoy the sexual relationship they had previously, following the onset of their symptoms of vulval cancer and subsequent treatment. The women's sense of aloneness was also manifest in their perception that there was a lack of knowledge and understanding about this condition both in their social world and the healthcare system in which they received treatment.
外阴癌是一种罕见的疾病，相关研究有限，对这种疾病的影响研究甚少。虽然身体上的影响很容易被描述，但对于这种疾病的心理、情感和社会影响却知之甚少。为了增加深入了解，我们进行了一项定性研究，以探讨英国患有外阴癌的女性的经历。这项研究采用了基于 Heidegger 和 Van Manen 著作的解释现象学方法，对 13 名年龄在 50 岁以下的女性进行了采访，这些女性在手术后 6 个月至 5 年内接受了采访。使用 Ritchie 和 Spencer 描述的框架分析方法对数据进行了分析。本文描述了数据中出现的孤独感这一概念。这包括考虑到由于女性家与医院之间的地理距离，女性感到孤立无援，以及她们描述的由于外阴癌症状的出现和随后的治疗而导致的性功能丧失和无法享受以前的性关系，她们感到与以前的自己分离。女性的孤独感也表现在她们认为，无论是在她们的社交圈还是在接受治疗的医疗体系中，对这种疾病的了解都很匮乏。
