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[一名21三体综合征患儿在生命最初几年参加早期医学社会干预中心后的经历]

[The experiences of a child with trisomy 21 after attending the Center for Early Medico-social Intervention during the 1st years of life].

作者信息

Raynaud D

机构信息

Centre d'Assistance Educative du Tout Petit, CAMSP, Paris.

出版信息

Ann Pediatr (Paris). 1990 Oct;37(8):518-21, 528.

PMID:2148254
Abstract

A physiotherapist's experience with Down syndrome children managed at an Early Medico-Social Intervention Center provides the opportunity for describing the different phases these children and their parents go through: shock upon learning of the disability at a time when the relationship between the parents and their baby has not yet been established; opening up of new horizons when the parents discover their child, with his or her abilities and development; adoption of the child who is gradually recognized, as a person with capacities, limitations and needs; separation and socialization; and the beginning of self-sufficiency with the attendance of school. Helping the child, family and caregivers to pass this series of milestones is probably more useful than applying predefined programs of stimulation.

摘要

一位物理治疗师在早期医疗社会干预中心对唐氏综合征儿童的治疗经历,为描述这些儿童及其父母所经历的不同阶段提供了契机:在父母与婴儿的关系尚未建立之时得知孩子残疾所带来的震惊;当父母发现孩子及其能力与发展时新视野的开启;接纳逐渐被认可的、有能力、有局限且有需求的孩子;分离与社会化;以及随着孩子上学开始走向自立。帮助孩子、家庭和照料者跨越这一系列关键节点,可能比应用预先设定的刺激方案更为有用。

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