van der Valk Tessa, Smit Cees
Vereniging Samenwerkende Ouder- en Patiëntenorganisaties, Soest.
Ned Tijdschr Geneeskd. 2011;155:A2968.
Biobanks are important for biomedical research into human diseases. Research physicians are often in need of human tissue and cells to conduct their research. However, they are often faced with the challenge of obtaining samples from a sufficient number of patients. Collaborating with patient organizations--especially for rare diseases--can lead to surprising results. The efforts of patient organizations can be crucial since they are well positioned to bring together patients and their samples, to initiate collaboration and share data for research and to find ways of generating long-term funding for research and biobanks.
生物样本库对于人类疾病的生物医学研究至关重要。研究医生常常需要人体组织和细胞来开展他们的研究。然而，他们经常面临从足够数量的患者那里获取样本的挑战。与患者组织合作——尤其是针对罕见病——可能会带来意想不到的成果。患者组织的努力可能至关重要，因为它们能够很好地将患者及其样本聚集起来，发起合作并共享研究数据，还能找到为研究和生物样本库筹集长期资金的方法。
