Cancer Research UK, Psychosocial Oncology Group, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.
Psychol Health Med. 2011 May;16(3):357-65. doi: 10.1080/13548506.2011.554563.
Meeting the complex needs of patients with high-grade glioma requires multidisciplinary input. How best to provide care after initial treatment ends is contentious. This study explored the experiences of patients and staff at one UK centre where regular multidisciplinary clinics and brain scanning is provided. In-depth interviews conducted with 10 patients and six staff were transcribed and analysed qualitatively. Patients reported: supportive, individualised care with familiar staff; good communication; that regular scanning was reassuring. Staff believed that team follow-up facilitated immediate decision-making and referral, and reduced visits. They felt that patients value seeing their scans. Patients and staff described positive and negative experiences of multidisciplinary follow-up. There is need to investigate the impact of different approaches to ongoing care.
满足高级别胶质瘤患者的复杂需求需要多学科的投入。初始治疗结束后如何提供最佳护理存在争议。本研究探讨了英国某中心的患者和工作人员的经验,该中心提供定期的多学科诊所和脑部扫描。对 10 名患者和 6 名工作人员进行了深入访谈,转录并进行了定性分析。患者报告:有熟悉的工作人员提供支持性、个性化的护理;良好的沟通;定期扫描让人安心。工作人员认为团队随访有助于做出即时决策和转诊,并减少就诊次数。他们认为患者重视查看自己的扫描结果。患者和工作人员描述了多学科随访的积极和消极体验。有必要研究不同的持续护理方法的影响。