School of Nursing and Midwifery, Victoria University, Melbourne, Victoria 8001, Australia.
Psychiatr Serv. 2011 May;62(5):548-50. doi: 10.1176/ps.62.5.pss6205_0548.
This study explored how caregivers of young adults who had experienced a first episode of psychosis coped with stigma while maintaining their caregiving role.
Qualitative interviews were undertaken with 20 caregivers in Melbourne, Australia.
Some caregivers adopted an open approach about disclosing their young person's illness. Alternatively, some were secretive about the illness, because of fears of and experiences with stigmatization if others found out. Caregivers also suggested ways to minimize the stigma that intensified their burden of care.
The findings showed the kinds of roles that family members and others have in supporting caregivers. Caregivers who were secretive about their situation were particularly vulnerable to feeling burdened and needed additional support from clinicians. Caregivers need increased support to enable them to better cope with and respond to stigma.
本研究探讨了经历首次精神病发作的年轻成年人的照顾者在维持其照顾角色的同时如何应对污名。
在澳大利亚墨尔本对 20 名照顾者进行了定性访谈。
一些照顾者对公开披露其年轻患者的病情持开放态度。或者，一些人对这种疾病守口如瓶，因为他们担心被污名化，如果其他人发现了，就会有这样的经历。照顾者还提出了一些方法来最小化污名化，从而减轻他们的照顾负担。
研究结果表明，家庭成员和其他人在支持照顾者方面扮演着各种角色。对自己的情况守口如瓶的照顾者尤其容易感到负担过重，需要临床医生提供额外的支持。照顾者需要更多的支持，以使他们能够更好地应对和应对污名化。
