School of Nursing and Midwifery, Victoria University, Melbourne, Vic., Australia.
J Clin Nurs. 2012 Jan;21(1-2):224-31. doi: 10.1111/j.1365-2702.2011.03836.x. Epub 2011 Sep 3.
To explore first-time primary caregivers' experience of the way mental health nurses and other mental health clinicians respond to them as carers of young people with first-episode psychosis.
Caregivers have a key role in supporting family members/relatives with mental illness, but their contribution is undervalued frequently by mental health nurses and other mental health clinicians. Design. Qualitative interpretative phenomenological analysis.
A qualitative interpretative design was undertaken, using semi-structured, audio-recorded interviews. Twenty primary caregivers were recruited through Orygen Youth Health, a first-episode psychosis centre in Melbourne. Interpretative phenomenological analysis was used to identify themes in the data.
Two competing themes were identified in the data, highlighting caregivers' contrasting experience with mental health nurses and other mental health clinicians. First, most clinical staff were approachable and supportive. Second, several carers felt their contribution was undervalued by some clinical staff. This was as a consequence of being excluded from clinical deliberations because of clinical staffs' concerns and young people's requests about maintaining confidentiality regarding treatment, as well as carers feeling their role was not taken seriously by clinical staff.
First-time primary carers have positive and negative experiences with first-episode psychosis mental health nurses and other clinicians, and these competing events are interrelated. Experiences are affected directly by the manner they are treated by clinical staff and this may, in turn, affect carers' commitment to caring, the way they engage with clinical staff on subsequent occasions and towards the first-episode psychosis service generally.
Greater appreciation is needed of the contribution, experience and difficulties caregivers encounter in their role and in engaging with mental health nurses and other clinicians. Additional training is required for clinical staff in family interventions and to familiarise them with legislation and mental health policies relating to carers.
探讨首次作为首发精神病患者照顾者的初级照顾者的体验，了解心理健康护士和其他心理健康临床医生对他们的反应方式。
照顾者在支持患有精神疾病的家庭成员/亲属方面发挥着关键作用，但他们的贡献经常被心理健康护士和其他心理健康临床医生低估。设计：定性解释现象学分析。
采用半结构化、录音访谈的定性解释设计。通过墨尔本首发精神病中心 Orygen Youth Health 招募了 20 名初级照顾者。使用解释现象学分析方法确定数据中的主题。
数据中确定了两个相互竞争的主题，突出了照顾者与心理健康护士和其他心理健康临床医生的不同体验。首先，大多数临床工作人员都易于接近且支持。其次，一些照顾者觉得他们的贡献被一些临床工作人员低估了。这是由于临床工作人员对保密性的担忧以及年轻人对治疗的保密请求，将他们排除在临床讨论之外，还有照顾者觉得临床工作人员没有认真对待他们的角色。
首次作为首发精神病患者照顾者的初级照顾者对首发精神病心理健康护士和其他临床医生有积极和消极的体验，这些相互竞争的事件相互关联。体验直接受到临床工作人员对待他们的方式的影响，这反过来又可能影响照顾者的照顾承诺、他们在随后的场合与临床工作人员的互动方式以及对首发精神病服务的总体看法。
需要更多地了解照顾者在其角色中遇到的贡献、经验和困难，并与心理健康护士和其他临床医生互动。需要对临床工作人员进行家庭干预方面的额外培训，并使他们熟悉与照顾者有关的立法和心理健康政策。
