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中重度后天性脑损伤患者的生活环境

Living environments for people with moderate to severe acquired brain injury.

作者信息

Colantonio Angela, Howse Dana, Kirsh Bonnie, Chiu Teresa, Zulla Rachel, Levy Charissa

机构信息

Saunderson Family Chair in Acquired Brain Injury Research, Toronto Rehabilitation Institute.

出版信息

Healthc Policy. 2010 May;5(4):e120-38.

PMID:21532762
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2875897/
Abstract

OBJECTIVES

This study examines the issue of living environments for persons with acquired brain injury (ABI), with the aim of identifying factors that enable or act as barriers to appropriate living environments.

METHODS

A qualitative study involving 31 semi-structured interviews conducted with 56 key informants representing various relevant sectors: institutional, community, residential and non-residential, consumer/advocacy and government/policy from six regions in the province of Ontario, Canada.

RESULTS

The study identified such barriers as lack of ABI-specific facilities, beds and trained staff and a poorly coordinated system in many areas, with long wait lists for specialized residential settings. Clients with ABI need individualized treatment, making development of a standardized model of care difficult, particularly for those with co-morbid conditions. Solutions such as more flexible options for clients and better trained staff emerged.

CONCLUSIONS

The study presents solutions to challenges and limitations in addressing appropriate living environments for persons with ABI.

摘要

目的

本研究探讨后天性脑损伤(ABI)患者的生活环境问题,旨在确定有助于营造合适生活环境的因素以及构成障碍的因素。

方法

一项定性研究,对来自加拿大安大略省六个地区的56名关键信息提供者进行了31次半结构化访谈,这些信息提供者代表了各个相关部门:机构、社区、住宅和非住宅、消费者/倡导者以及政府/政策部门。

结果

该研究发现了一些障碍,如缺乏针对ABI的设施、床位和训练有素的工作人员,许多地区的系统协调不佳,专门住宅环境的等候名单很长。ABI患者需要个性化治疗,这使得制定标准化护理模式变得困难,尤其是对于那些患有合并症的患者。出现了一些解决方案,如为患者提供更灵活的选择以及训练有素的工作人员。

结论

该研究提出了解决为ABI患者提供合适生活环境时所面临的挑战和限制的方案。

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本文引用的文献

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Episodic disorders of behaviour and affect after acquired brain injury.后天性脑损伤后的行为和情感发作性障碍。
Neuropsychol Rehabil. 2003 Jan-Mar;13(1-2):241-58. doi: 10.1080/09602010244000435.
2
Assessment and diagnosis of mild traumatic brain injury, posttraumatic stress disorder, and other polytrauma conditions: burden of adversity hypothesis.轻度创伤性脑损伤、创伤后应激障碍及其他多发伤情况的评估与诊断:逆境负担假说
Rehabil Psychol. 2009 Aug;54(3):239-246. doi: 10.1037/a0016908.
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An update on substance use and treatment following traumatic brain injury.创伤性脑损伤后物质使用与治疗的最新情况
Ann N Y Acad Sci. 2008 Oct;1141:148-62. doi: 10.1196/annals.1441.029.
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Exploring postinjury living environments for children and youth with acquired brain injury.探索脑损伤儿童和青少年伤后的生活环境。
Arch Phys Med Rehabil. 2008 Sep;89(9):1803-10. doi: 10.1016/j.apmr.2008.02.025.
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Challenges and approaches to the identification of traumatic brain injury among nursing home residents.养老院居民中创伤性脑损伤识别的挑战与方法
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Long term symptoms and limitations of activity of people with traumatic brain injury: a ten-year follow-up.创伤性脑损伤患者的长期症状及活动受限情况:十年随访
Psychol Rep. 2005 Aug;97(1):169-79. doi: 10.2466/pr0.97.1.169-179.
7
The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum.创伤性脑损伤患者、其家庭、医生及健康专业人员在整个连续护理过程中的经历。
Brain Inj. 2005 Aug 10;19(8):585-97. doi: 10.1080/02699050400025026.
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Exploring the service needs and experiences of persons with TBI and their families: the South Carolina experience.探索创伤性脑损伤患者及其家庭的服务需求与经历:南卡罗来纳州的经验
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Young people with brain injury in nursing homes: not the best option!养老院中患有脑损伤的年轻人:并非最佳选择!
Aust Health Rev. 2002;25(3):46-51. doi: 10.1071/ah020046.
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Long-term care of people below age 65 with severe acquired brain injury: appropriateness of aged care facilities.65岁以下重度后天性脑损伤患者的长期护理:老年护理机构的适用性。
Aust N Z J Public Health. 2001 Jun;25(3):261-4. doi: 10.1111/j.1467-842x.2001.tb00574.x.