Pound Carole
School of Health Care and Social Sciences, Brunel University, Uxbridge, Middlesex, UK.
Int J Speech Lang Pathol. 2011 Jun;13(3):197-206. doi: 10.3109/17549507.2011.530692.
Dominant cultural narratives of disability and rehabilitation tend to emphasize a unilateral perspective on need, dependency, and giving. Yet, making a contribution and participating in a two-way process of giving are common features of strong, healthy relationships and community belonging. This paper will explore reciprocity within social relationships and link aspects of making a contribution and taking part to the concept of Active Citizenship. Drawing on theory and research from sociology, psychology, rehabilitation, ageing, and disability studies, the paper will discuss issues for researchers, therapists, support workers, and friends in building more equal relationships between people with communication disability and those they live and work with. Through descriptions of two community building projects developed by people with aphasia at Connect- the communication disability network in the UK, the paper will illuminate what active citizenship means and ways collaborative, user-led projects can promote social capital and leadership by people who live with a communication disability. This is positioned as an alternative to models and mindsets which risk perpetuating careers for people as passive recipients of care and support. The paper concludes by identifying practical implications for clinicians in promoting reciprocal relationships with and between adults with communication impairments.
关于残疾与康复的主流文化叙事往往强调对需求、依赖和给予的单边观点。然而,做出贡献并参与双向给予过程是稳固、健康关系及社区归属感的共同特征。本文将探讨社会关系中的互惠性,并将做出贡献和参与的各个方面与积极公民身份的概念联系起来。借鉴社会学、心理学、康复学、老年学和残疾研究的理论与研究,本文将讨论研究人员、治疗师、支持工作者以及朋友在建立沟通障碍者与其生活和工作伙伴之间更平等关系时所面临的问题。通过描述英国沟通障碍网络Connect上失语症患者开展的两个社区建设项目,本文将阐明积极公民身份的含义,以及由用户主导的合作项目能够促进沟通障碍者的社会资本和领导力的方式。这被定位为一种替代模式和思维方式的选择,那些模式和思维方式可能会使人们持续处于被动接受照顾和支持的状态。本文最后确定了临床医生在促进与有沟通障碍的成年人以及他们之间的互惠关系方面的实际意义。