墨西哥裔美国成年人愿意与医疗保健提供者分享家族健康史。
Willingness of Mexican-American adults to share family health history with healthcare providers.
机构信息
Social and Behavioral Research Branch, National Human Genome Research Institute/NIH, 31 Center Drive, Bethesda, MD 20892, USA.
出版信息
Am J Prev Med. 2011 Jun;40(6):633-6. doi: 10.1016/j.amepre.2011.02.013.
BACKGROUND
Collecting family health history (FHH) information to share with healthcare providers is an important aspect of health-risk assessment.
PURPOSE
To examine associations between the content of FHH-informed risk feedback and willingness to share the information with a healthcare provider.
METHODS
Data were collected between June 2008 and July 2009 from 475 Mexican-origin adults residing in 161 households. Participants completed surveys 3 months after receiving FHH-informed risk feedback. Households were randomly assigned to feedback conditions in which household members received one or more of the following: an FHH pedigree, personalized risk assessments (PRAs), and tailored behavioral recommendations. Logistic regression models were fitted using generalized estimating equations, with exchangeable covariances, to account for the clustering of responses within and the random assignment of feedback condition to household. Analyses were completed in May 2010.
RESULTS
Participants who received personalized risk assessments were more willing to share their feedback with a provider than those who received a pedigree only (OR=2.25, p=0.02). The receipt of tailored behavioral recommendations did not significantly increase willingness to share feedback with a provider (OR=0.79, p=0.48).
CONCLUSIONS
The provision of PRAs in FHH assessments appears to motivate participants to consider sharing their FHH with a healthcare provider.
背景
收集家庭健康史（FHH）信息并与医疗保健提供者共享是健康风险评估的一个重要方面。
目的
研究 FHH 知情风险反馈的内容与愿意与医疗保健提供者共享信息之间的关联。
方法
数据收集于 2008 年 6 月至 2009 年 7 月期间，来自居住在 161 户家庭的 475 名墨西哥裔成年人。参与者在收到 FHH 知情风险反馈后 3 个月完成了调查。家庭被随机分配到反馈条件中，其中家庭成员收到以下一项或多项内容：FHH 系谱、个性化风险评估（PRA）和定制的行为建议。使用广义估计方程拟合逻辑回归模型，具有可交换协方差，以解释家庭内的反应聚类和反馈条件的随机分配。分析于 2010 年 5 月完成。
结果
与仅收到系谱的参与者相比，收到个性化风险评估的参与者更愿意将其反馈提供给提供者（OR=2.25，p=0.02）。收到定制行为建议并未显著增加与提供者共享反馈的意愿（OR=0.79，p=0.48）。
结论
在 FHH 评估中提供 PRA 似乎会激励参与者考虑与医疗保健提供者共享他们的 FHH。
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