Fuller Melissa, Myers Melanie, Webb Thomas, Tabangin Meredith, Prows Cynthia
College of Allied Health, University of Cincinnati, Cincinnati, OH, USA.
J Genet Couns. 2010 Feb;19(1):84-96. doi: 10.1007/s10897-009-9264-6. Epub 2009 Oct 24.
Family health history is one of the best predictors of an individual's risk for common disease, yet it is underutilized in routine care. Although the Surgeon General has recommended consumers record their family health history and share it with their health care provider, providers' perceptions of patient-generated family histories are unknown. To learn more about providers' experience with and perceptions about patient-generated family histories, we mailed surveys to 301 providers and had a response rate of 24% (n = 68). Seventy-three percent felt a patient-generated computer pedigree would improve their ability to assess risk as compared to their current methods. Seventy percent felt a patient-generated computer pedigree would either have no effect on or would increase the number of patients that could be seen in a day. Results suggest that providers appreciate the potential benefits of patient-generated family histories. Genetic counselors and nurses are in a prime position to promote and facilitate the use of patient-generated family health histories in routine care.
家族健康史是预测个体患常见疾病风险的最佳指标之一，但在常规医疗中却未得到充分利用。尽管卫生局局长已建议消费者记录其家族健康史并与医疗服务提供者分享，但提供者对患者提供的家族病史的看法尚不清楚。为了更多地了解提供者对患者提供的家族病史的经验和看法，我们向301名提供者邮寄了调查问卷，回复率为24%（n = 68）。73%的人认为，与目前的方法相比，患者提供的计算机化系谱图将提高他们评估风险的能力。70%的人认为，患者提供的计算机化系谱图要么不会产生影响，要么会增加一天内可接待的患者数量。结果表明，提供者认识到患者提供的家族病史的潜在益处。遗传咨询师和护士最有条件在常规医疗中推广和促进使用患者提供的家族健康史。
