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社论:遗传和基因组研究——改变责任模式。

Editorial: genetic and genomic research-changing patterns of accountability.

出版信息

Account Res. 2011 May;18(3):121-31. doi: 10.1080/08989621.2011.575031.

Abstract

Debates about genomic science have raised questions about the implications for ethics and accountability. Accountability has external and internal aspects. Whereas ethical review, including attention to appropriate consent procedures, has been central to 'giving an account' externally, there are also issues internal to the practice of science itself. The pursuit of truth is central to the scientific endeavour, but truths can sometimes be 'inconvenient', leading to complex questions of accountability that go beyond the issues of consent. This is illustrated by the case of the Havasupai.

摘要

关于基因组科学的争论引发了人们对其伦理和责任含义的质疑。责任有外在和内在两个方面。虽然伦理审查,包括对适当同意程序的关注,一直是外部“说明情况”的核心,但科学实践本身也存在一些内在问题。追求真理是科学努力的核心,但真理有时可能是“不方便的”,导致超出同意问题的复杂问责问题。这一点可以通过哈瓦苏派的案例来说明。

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