Durfy S J
Department of Medical History and Ethics, School of Medicine, University of Washington, Seattle 98195.
Arch Pathol Lab Med. 1993 May;117(5):466-9.
This article provides an overview of ethical issues in genetic testing and screening as they are currently considered in relationship to the Human Genome Project. Previous landmark reports and policy recommendations on genetic testing and screening are briefly described. The goals and research interests of the joint National Institutes of Health/Department of Energy Ethical, Legal, and Social Working Group of the Human Genome Project are outlined. To provide an example of one method by which ethical issues in genetics may be addressed, the ethical framework and practical aspects of a clinical ethics research project at the University of Washington, Seattle, are described. Finally, future directions for the study of ethical and social issues related to genetic testing and screening programs are suggested.
本文概述了基因检测与筛查中的伦理问题，这些问题是目前在与人类基因组计划相关的背景下所考虑的。文中简要介绍了以往关于基因检测与筛查的具有里程碑意义的报告及政策建议。概述了美国国立卫生研究院/能源部人类基因组计划联合伦理、法律和社会问题工作组的目标及研究兴趣。为举例说明解决遗传学伦理问题的一种方法，本文描述了西雅图华盛顿大学一个临床伦理研究项目的伦理框架及实际情况。最后，提出了与基因检测和筛查项目相关的伦理和社会问题研究的未来方向。
