Harvard University School of Public Health, Boston, MA, USA.
Am J Intellect Dev Disabil. 2011 May;116(3):246-60. doi: 10.1352/1944-7558-116.3.246.
This study described predictors of caregiver burden among parents of children with developmental disabilities. The sample, obtained from the 2005-2006 National Survey of Children With Special Health Care Needs, included 12,225 children, aged 5 to 17 years, with a developmental disability. Structural equation modeling assessed the relationships between the factors of Caregiver Burden, Ease of Accessing and Navigating the Health Care System, and Unmet Health Care Needs. Caregiver burden was inversely associated with ease of accessing and navigating the health care system (β = -0.094, SE (β) = 0.045) and positively associated with unmet health care needs (β = 0.428, SE (β) = 0.036). Parents of poor, minority, and uninsured children experienced significantly greater caregiver burden. Bolstering services, particularly for vulnerable families, may ameliorate caregiver burden.
本研究描述了儿童发育障碍父母的照顾者负担的预测因素。该样本来自 2005-2006 年全国有特殊健康护理需求的儿童调查，包括 12225 名 5 至 17 岁有发育障碍的儿童。结构方程模型评估了照顾者负担、获取和导航医疗保健系统的便利性以及未满足的医疗保健需求之间的关系。照顾者负担与获取和导航医疗保健系统的便利性呈负相关（β=-0.094，SE（β）=0.045），与未满足的医疗保健需求呈正相关（β=0.428，SE（β）=0.036）。贫困、少数族裔和没有保险的儿童的父母的照顾者负担显著增加。加强服务，特别是为弱势家庭提供服务，可能会减轻照顾者负担。
