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认知不公正与治疗性法理学之间:涉及自闭症患者、学习障碍者和/或精神疾病患者家庭的死因裁判程序。

Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health.

作者信息

Ryan Sara, Ribenfors Francesca, Mikulak Magdalena, Coles Deborah

机构信息

Department of Social Care and Social Work, Manchester Metropolitan University, Manchester, UK.

Faculty of Health and Medicine, Lancaster University, Lancaster, UK.

出版信息

Sociol Health Illn. 2025 Feb;47(2):e13855. doi: 10.1111/1467-9566.13855. Epub 2024 Nov 18.

Abstract

Understanding how and why someone dies unexpectedly is key to bereaved family members. The coronial process in England investigates instances where the cause of death is unknown, violent or unnatural and/or occurred in state detention. Families are held to be at the centre of this process and the coroner's role has extended to concern about therapeutic jurisprudence, that is, how legal processes can minimise negative consequences for participants without jeopardising due process. Therapeutic jurisprudence involves unresolved tensions, however, and an epistemic power imbalance. Within the inquest, knowledge is produced, evaluated and contested, and epistemic privilege may be unevenly distributed. The inquest is also a process that, as we demonstrate, requires epistemic courage and resistance on the part of families. Families with relatives who are autistic, have learning disabilities and/or mental ill health can experience epistemic and structural injustice before an unexpected death which makes the distinctiveness of their experiences important to understand. Here, we report on a qualitative interview project which focused on how bereaved families experience the coronial process after their relative died in receipt of health and/or social care support.

摘要

了解某人意外死亡的方式和原因是丧亲家庭成员的关键所在。英格兰的死因裁判程序会调查死因不明、暴力或非自然死亡以及/或者发生在国家拘留场所的死亡事件。家属被视为这一程序的核心,死因裁判官的职责范围已扩大到关注治疗法学,也就是说,法律程序如何在不危及正当程序的情况下,将对参与者的负面影响降至最低。然而,治疗法学存在尚未解决的矛盾以及认知权力的不平衡。在死因调查中,知识得以产生、评估和争论,认知特权的分配可能并不均衡。正如我们所表明的,死因调查也是一个需要家属具备认知勇气并进行抗争的过程。家中有自闭症、学习障碍和/或精神健康问题亲属的家庭,在意外死亡发生之前可能会经历认知和结构上的不公正,因此了解他们经历的独特性很重要。在此,我们报告一项定性访谈项目,该项目聚焦于丧亲家庭在其亲属在接受健康和/或社会护理支持期间死亡后,是如何体验死因裁判程序的。

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Global prevalence of autism: A systematic review update.全球自闭症患病率:系统综述更新。
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