Centre for Public Policy Research, King's College, London.
Health Expect. 2011 Jun;14(2):210-9. doi: 10.1111/j.1369-7625.2011.00694.x.
Shared decision-making approaches, by recognizing the autonomy and responsibility of both health professionals and patients, aim for an ethical 'middle way' between 'paternalistic' and 'consumerist' models of clinical decision making. Shared decision making has been understood in various ways. In this paper, we distinguish narrow and broader conceptions of shared decision making and explore their relative strengths and weaknesses. In the first part of the paper, we construct a summary characterization of an archetypal narrow conception of shared decision making (a conception that does not coincide with any specific published model but which reflects features of a variety of models). We show the shortcomings of such a conception and highlight the need to broaden out our thinking about shared decision making if the ethical (and instrumental) goals of shared decision making are to be realized. In the second part of the paper, we acknowledge and explore the advantages and disadvantages of operating with broader conceptions of shared decision making by considering the analogies between health professional-patient relationships and familiar examples of 'open-ended' relationships (e.g. friendships). We conclude by arguing that the illustrated 'trade-offs' between narrow conceptions (which may protect patients from inappropriately paternalistic professionals but preclude important forms of professional support) and broad conceptions (which render more forms of professional support legitimate but may require skills or virtues that not all health professionals possess) suggest the need to find ways, in principle and in practice, of taking seriously both patient autonomy and autonomy-supportive professional intervention.
共享决策方法承认卫生专业人员和患者的自主权和责任,旨在为临床决策的“家长式”和“消费者主义”模式之间找到一种伦理的“中庸之道”。共享决策有多种理解方式。在本文中,我们区分了狭义和广义的共享决策概念,并探讨了它们各自的优缺点。在本文的第一部分,我们构建了一个典型的狭义共享决策概念(与任何特定的已发表模型都不相符,但反映了多种模型的特征)的简要特征描述。我们展示了这种概念的局限性,并强调如果要实现共享决策的伦理(和工具)目标,就需要拓宽我们对共享决策的思考。在本文的第二部分,我们通过考虑医患关系与熟悉的“开放式”关系(例如友谊)之间的相似性,承认并探讨了采用广义共享决策概念的优势和劣势。最后,我们认为狭义概念(可以保护患者免受不适当的家长式专业人员的影响,但排除了重要形式的专业支持)和广义概念(使更多形式的专业支持合法化,但可能需要并非所有卫生专业人员都具备的技能或美德)之间的“权衡取舍”表明,需要在原则上和实践中找到一种方法,认真对待患者自主权和支持自主的专业干预。