Tracy Jane
Centre for Developmental Disability Health Victoria, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria.
Aust Fam Physician. 2011 Apr;40(4):202-8.
The health and life expectancy of Australians with Down syndrome has improved dramatically over recent decades, resulting in more people living into adulthood and accessing community and hospital based health and social services.
This article presents information and resources helpful to general practitioners providing healthcare to patients who have Down syndrome. Healthcare issues through the lifespan are explored, the importance of proactive management is emphasised and strategies are outlined.
Australians with Down syndrome are an interesting and rewarding group of people with whom to work. They present us with particular challenges in the way we provide healthcare and, in doing so, offer us an opportunity to improve the way we work with other patients who have cognitive and communication difficulties; chronic, complex health and social needs; family or paid carers involved in health management and those who require health advocacy as a part of healthcare provision.
近几十年来，患有唐氏综合征的澳大利亚人的健康状况和预期寿命有了显著改善，这使得更多患者能够活到成年，并获得基于社区和医院的健康及社会服务。
本文提供了一些信息和资源，有助于全科医生为患有唐氏综合征的患者提供医疗保健服务。探讨了患者一生中的医疗问题，强调了积极管理的重要性，并概述了相关策略。
患有唐氏综合征的澳大利亚人是一群有趣且值得为之工作的人群。他们在我们提供医疗保健的方式上给我们带来了特殊挑战，同时也为我们提供了一个机会，来改进我们与其他有认知和沟通困难、患有慢性复杂健康及社会需求、有参与健康管理的家庭或付费护理人员以及需要将健康倡导作为医疗保健一部分的患者打交道的方式。
