Fundación Carmen Pardo-Valcarce, Monasterio de las Huelgas 15, 28049 Madrid, Spain.
Res Dev Disabil. 2011 Nov-Dec;32(6):2847-52. doi: 10.1016/j.ridd.2011.05.021. Epub 2011 Jun 8.
Family impact (or family burden) is a concept born in the field of mental health that has successfully been exported to the ambit of intellectual disability (ID). However, differences in family impact associated with severe mental health disorders (schizophrenia), to ID or to mental health problems in ID should be expected. Seventy-two adults with intellectual disability clients of the Carmen Pardo-Valcarce Foundation's sheltered workshops and vocational employment programmes in Madrid (Spain), 203 adults diagnosed with schizophrenia from four Spanish Community Mental Health Services (Barcelona, Madrid, Granada and Navarra) and 90 adults with mental health problems in ID (MH-ID) from the Parc Sanitari Sant Joan de Déu Health Care Site in Sant Boi de Llobregat, Barcelona (Spain) were asked to participate in the present study along with their main caregivers. Family impact experienced by caregivers was assessed with the ECFOS-II/SOFBI-II scale (Entrevista de Carga Familiar Objetiva y Subjetiva/Objective and Subjective Family Burden Interview). In global terms, results showed that the higher family impact was found between caregivers to people with MH-ID. The interaction of both conditions (ID and mental health problems) results in a higher degree of burden on families than when both conditions are presented separately. There was also an impact in caregivers to people with schizophrenia, this impact being higher than the one detected in caregivers to people with intellectual disability. Needs of caregivers to people with disability should be addressed specifically in order to effectively support families.
家庭影响(或家庭负担)是心理健康领域的一个概念,已成功引入智力残疾(ID)领域。然而,严重精神健康障碍(精神分裂症)、ID 或 ID 中的精神健康问题与 ID 相关的家庭影响存在差异是可以预期的。本研究邀请了马德里 Carmen Pardo-Valcarce 基金会庇护性工作坊和职业就业项目的 72 名成年 ID 客户、来自四个西班牙社区心理健康服务机构(巴塞罗那、马德里、格拉纳达和纳瓦拉)的 203 名被诊断患有精神分裂症的成年人以及巴塞罗那 Sant Boi de Llobregat 的 Parc Sanitari Sant Joan de Déu 保健中心的 90 名 ID 中的精神健康问题成年人及其主要照顾者参与。使用 ECFOS-II/SOFBI-II 量表(客观和主观家庭负担访谈)评估照顾者的家庭影响。总体而言,结果表明,ID 中有精神健康问题的成年人的照顾者家庭负担最高。两种情况(ID 和精神健康问题)的相互作用导致家庭负担程度高于两种情况分别出现时的负担程度。精神分裂症患者的照顾者也存在影响,这种影响高于 ID 患者照顾者的影响。为了有效支持家庭,应该专门满足残疾人士照顾者的需求。