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人类基因组学:非裔美国人面临的挑战及对直接社会工作实践的政策启示。

Human genomics: challenges for African Americans and policy implications for direct social work practice.

机构信息

Ethelyn R. Strong School of Social Work, Norfolk State University, Norfolk, Virginia 23504, USA.

出版信息

Soc Work Public Health. 2011;26(4):366-79. doi: 10.1080/19371918.2011.579044.

Abstract

Recent advancements in the scientific study of the human genome may benefit African Americans through increased knowledge of the causes and cures for diseases that disproportionately affect them. Other potential benefits are far reaching and include legal and socioeconomic importance for the African American community. Although these benefits have tremendous appeal, advancements in genomic science pose significant social issues for African Americans. Disparities in access, insensitive and discriminatory programming, a lack of appreciation of environmental factors, and misuse of genetic databases are among the challenges for African Americans. This article identifies the major benefits and challenges of human genomics cited in literature from various disciplines and discusses policy implications for direct social work practice. The author explains the importance of social work involvement in shaping genetic policies and outlines traditional roles social workers may play in establishing ethnic-sensitive public policies and agency practices to protect the interests of African Americans who interface with the rapidly expanding field of human genomics.

摘要

近年来,人类基因组学的科学研究取得了新的进展,这可能有助于增加对非裔美国人中发病率较高的疾病的病因和治疗方法的了解。其他潜在的好处还包括对非裔美国人社区具有法律和社会经济意义。尽管这些好处极具吸引力,但基因组科学的进步也给非裔美国人带来了重大的社会问题。非裔美国人在获取资源方面存在差异、编程缺乏敏感性和歧视性、对环境因素缺乏认识以及对基因数据库的滥用等问题,都是他们面临的挑战。本文从不同学科的文献中确定了人类基因组学中提到的主要利益和挑战,并讨论了直接社会工作实践的政策含义。作者解释了社会工作人员参与制定遗传政策的重要性,并概述了社会工作人员在制定对种族敏感的公共政策和机构实践以保护与快速发展的人类基因组学领域互动的非裔美国人利益方面可能发挥的传统作用。

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