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非裔美国人与基因研究:风险与利益——对社会工作专业的启示。

African Americans and genetic research, risk versus benefit: implications for the profession of social work.

机构信息

Ethelyn R. Strong School of Social Work, Norfolk State University, Norfolk, Virginia, USA.

出版信息

Soc Work Public Health. 2011;26(4):380-91. doi: 10.1080/19371918.2011.579485.

Abstract

The Human Genome Project was a 13-year study with great potential for improving the health of the current generation and extending the life of future generations. Genetic research, though showing potential for good, may also result in societal problems. This article considers the implications of future genetic research for African Americans and other vulnerable groups with a retrospective view of medical research and the African Americans' experience. In light of the growing health disparity between Whites and Blacks, this article argues for minority participation in clinical trials and other studies. It addresses the role of social workers as genetic counselors and encourages, especially social workers of color, involvement in the field of genetics as advocates, teachers, and as members of research teams.

摘要

人类基因组计划是一项为期 13 年的研究,具有改善当代人健康和延长未来几代人寿命的巨大潜力。遗传研究虽然有潜在的好处,但也可能导致社会问题。本文通过回顾医学研究和非裔美国人的经历,考虑了未来遗传研究对非裔美国人和其他弱势群体的影响。鉴于白人和黑人之间日益扩大的健康差距,本文主张少数族裔参与临床试验和其他研究。本文还探讨了社会工作者作为遗传咨询师的作用,并鼓励有色人种的社会工作者作为倡导者、教师以及研究团队的成员,参与到遗传学领域中来。

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