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多发性硬化症中老年患者对支持小组的使用情况及需求概况。

A profile of support group use and need among middle-aged and older adults with multiple sclerosis.

作者信息

Finlayson Marcia L, Cho Chi C

机构信息

Department of Occupational Therapy, University of Illinois at Chicago, Chicago, Illinois 60612, USA.

出版信息

J Gerontol Soc Work. 2011 Jul;54(5):475-93. doi: 10.1080/01634372.2011.575446.

Abstract

This study compared middle-aged and older adults with multiple sclerosis (MS, N = 1,275) according to their use of support groups and identified factors associated with perceived need. Over 64.6% (n = 824) of participants had attended a MS support group meeting at least once. Individuals who had never attended a group were more likely to reside in urban or suburban communities, report lower symptom interference, and fewer activity limitations. Women, individuals without a helper, and people with greater symptom interference were more likely to perceive a need for a support group. Findings raise questions for professionals involved in developing and implementing multiple sclerosis support groups.

摘要

本研究根据中年及老年多发性硬化症(MS,N = 1275)患者对支持小组的使用情况进行了比较,并确定了与感知需求相关的因素。超过64.6%(n = 824)的参与者至少参加过一次MS支持小组会议。从未参加过小组的个体更有可能居住在城市或郊区社区,报告的症状干扰较低,活动受限较少。女性、没有帮手的个体以及症状干扰较大的人更有可能认为需要支持小组。研究结果为参与开发和实施多发性硬化症支持小组的专业人员提出了问题。

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