Pawar Purva, Xie Shelly M, Varghese Angel R, Smith Adrian, Gao Jie, Kamp Elizabeth Vander, Kirklin Kimberly, Jones Benjamin A, Meador William R, Yuen Hon K
School of Public Health, University of Alabama at Birmingham, 1720 2nd Ave S, Birmingham, AL 35294, USA.
UAB Arts in Medicine, University of Alabama at Birmingham, Birmingham, AL 35294, USA.
Healthcare (Basel). 2025 May 9;13(10):1104. doi: 10.3390/healthcare13101104.
: Emotional changes significantly affect people with multiple sclerosis (PwMS), often leading to negative psychological symptoms including grief. Effective management of these symptoms can foster personal growth, increase confidence, and renew hope. While expressive writing has demonstrated psychological benefits in processing trauma and chronic conditions, its effects on PwMS remain underexplored. This study aimed to address this gap by examining the experiences of PwMS who participated in a 10-week coach-guided videoconferencing expressive writing program. : Twenty-five adults with MS from 10 different states across the United States participated in a 10-week coach-guided videoconferencing expressive writing program. After they completed the program, participants were interviewed individually via Zoom using a structured guide. Interviews explored participants' experiences and perceptions of the program. All interviews were audio-recorded and transcribed verbatim for analysis. Interview transcripts were analyzed using thematic analysis within a phenomenological framework. : Analysis revealed four themes reflecting therapeutic benefits received from the expressive writing program. These themes included Improved Emotional Processing, Promoting Healing; Therapeutic Coping; Radical Acceptance Through Deeper Understanding and Self-Forgiveness; and Empowerment Through Self-Discovery and Transformation. : The findings highlight participants' psychological progression from emotional processing to transformation, emphasizing the program's role in guiding them through their experiences of grief and other emotions related to their MS. This process provided them with both a sense of empowerment and a renewed outlook on life. Results suggest that expressive writing is a promising intervention that offers PwMS an accessible tool for emotional well-being and self-discovery.
情绪变化对多发性硬化症患者(PwMS)有显著影响,常常导致包括悲伤在内的负面心理症状。有效管理这些症状有助于个人成长、增强信心并重燃希望。虽然表达性写作已被证明在处理创伤和慢性疾病方面具有心理益处,但其对PwMS的影响仍未得到充分探索。本研究旨在通过考察参与为期10周的教练指导视频会议表达性写作项目的PwMS的经历来填补这一空白。
来自美国10个不同州的25名成年多发性硬化症患者参与了为期10周的教练指导视频会议表达性写作项目。项目结束后,通过结构化指南,利用Zoom对参与者进行了单独访谈。访谈探讨了参与者对该项目的经历和看法。所有访谈均进行了录音,并逐字转录以供分析。访谈记录在现象学框架内采用主题分析法进行分析。
分析揭示了四个主题,反映了从表达性写作项目中获得的治疗益处。这些主题包括改善情绪处理、促进康复;治疗性应对;通过更深入的理解和自我宽恕实现彻底接纳;以及通过自我发现和转变获得力量。
研究结果突出了参与者从情绪处理到转变的心理进展,强调了该项目在引导他们经历与多发性硬化症相关的悲伤及其他情绪方面所起的作用。这一过程赋予了他们力量感和全新的人生观。结果表明,表达性写作是一种很有前景的干预措施,为PwMS提供了一种实现情绪健康和自我发现的便捷工具。