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他们准备得如何?小儿实体器官移植受者的父母以及移植后从医院到家庭的过渡。

How ready are they? Parents of pediatric solid organ transplant recipients and the transition from hospital to home following transplant.

作者信息

Lerret Stacee M, Weiss Marianne E

机构信息

Children's Hospital of Wisconsin Marquette University, College of Nursing, Milwaukee, WI, USA.

出版信息

Pediatr Transplant. 2011 Sep;15(6):606-16. doi: 10.1111/j.1399-3046.2011.01536.x. Epub 2011 Jul 8.

DOI:10.1111/j.1399-3046.2011.01536.x
PMID:21736682
Abstract

Poor discharge transition is evidence of a gap between evidence-based practices and current health care delivery. Pediatric SOT recipients are a vulnerable population at risk of complications during the discharge transition. The aim of this study was to investigate factors associated with the transition care from hospital to home. We studied the transition experience of parents of heart, liver, or kidney recipients to identify opportunities for improvement in discharge and post-discharge care processes and outcomes. Thirty-seven parents from three different pediatric transplant centers completed questionnaires on the day of hospital discharge and three wk following hospital discharge. Care coordination was associated with readiness for hospital discharge. Readiness for hospital discharge was subsequently associated with post-discharge coping difficulty, adherence difficulty with medical follow-up, and family impact. Identifying parents who are not ready to go home provides an opportunity to offer additional support services so parents can effectively manage their child's recovery and continuing care at home.

摘要

不良的出院过渡体现了循证实践与当前医疗服务之间的差距。小儿实体器官移植受者是一个脆弱群体,在出院过渡期间有发生并发症的风险。本研究的目的是调查与从医院到家庭的过渡护理相关的因素。我们研究了心脏、肝脏或肾脏移植受者父母的过渡经历,以确定改善出院及出院后护理流程和结果的机会。来自三个不同儿科移植中心的37名父母在出院当天及出院后3周完成了问卷调查。护理协调与出院准备情况相关。出院准备情况随后又与出院后应对困难、医疗随访依从困难以及家庭影响相关。识别那些尚未准备好回家的父母,为提供额外支持服务提供了机会,以便父母能够有效地管理孩子在家中的康复和持续护理。

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