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一种用于沟通药物对类风湿关节炎结构关节损伤进展速度影响的患者决策辅助工具设计的实验评估。

An experimental evaluation of patient decision aid design to communicate the effects of medications on the rate of progression of structural joint damage in rheumatoid arthritis.

机构信息

Department of Medicine, Rheumatology, College of Human Medicine, Michigan State University, Grand Rapids, MI 49546, USA.

出版信息

Patient Educ Couns. 2012 Mar;86(3):329-34. doi: 10.1016/j.pec.2011.06.001. Epub 2011 Jul 12.

DOI:10.1016/j.pec.2011.06.001
PMID:21752570
Abstract

OBJECTIVE

To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD).

METHODS

91 first year psychology students and 91 RA patients participated in a prospective randomized, single blind, factorial experimental design evaluating the effect of four information formats on: satisfaction with risk communication, verbatim and gist recall of a hypothetical anti-rheumatic drug's ability to slow the rate of progression of SJD.

RESULTS

Both groups underestimated the hypothetical drug's ability to slow SJD. Formats that supported the narrative statement with a reinforcing graphic element resulted in recall closer to the true value. Comparison of the results from testing of RA patients and college students were remarkably similar across formats.

CONCLUSION

Rate of progression as communicated by narrative statement plus a graphic element (i.e. speedometer metaphor or pictograph) aided recall better than a narrative statement alone. Our results suggest that testing decision aid components with non-patients may provide data generalizable to patient populations.

PRACTICE IMPLICATIONS

Graphics must be used carefully in patient decision aids as they can enhance recall, but may also introduce unintended recall bias.

摘要

目的

探索在患者决策辅助工具中使用的信息呈现格式在多大程度上有效地传达了一种疾病修饰抗风湿药物减缓类风湿关节炎相关结构性关节损伤 (SJD) 进展速度的能力。

方法

91 名一年级心理学学生和 91 名 RA 患者参与了一项前瞻性随机、单盲、析因实验设计,评估了四种信息格式对以下方面的影响:对风险沟通的满意度、对假设抗风湿药物减缓 SJD 进展速度能力的逐字和要点回忆。

结果

两组都低估了假设药物减缓 SJD 的能力。支持叙述性陈述的格式,并辅以强化图形元素,结果更接近真实值。对 RA 患者和大学生进行测试的结果在格式之间非常相似。

结论

通过叙述性陈述加图形元素(例如速度计隐喻或象形图)传达的进展速度比单独的叙述性陈述更有助于回忆。我们的结果表明,用非患者测试决策辅助工具的组件可能会提供可推广到患者群体的数据。

实践意义

在患者决策辅助工具中使用图形必须谨慎,因为它们可以增强回忆,但也可能引入意外的回忆偏差。

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