Department of Medicine and Therapeutics, Chinese University of Hong Kong, 9/F Clinical Sciences Building, Prince of Wales Hospital, 30-32 Ngan Shing Street, Shatin, N.T., Hong Kong.
Rheumatology (Oxford). 2012 Feb;51(2):284-92. doi: 10.1093/rheumatology/ker247. Epub 2011 Jul 13.
A cross-sectional study was performed to assess the self-reported loss of labour and non-labour market productivity, as well as to characterize the risk factors of loss of productivity in patients with SLE.
A consecutive sample of 125 Chinese patients with a diagnosis of SLE and within working age was recruited. Work disability, daily activity limitations and receipt of social help, along with demographic information and health status, were collected from a self-reported questionnaire. Disease characteristics were collected by clinical examination and chart review. Univariate and multivariate logistic analyses were used to describe the relationships between labour/non-labour productivity and demographic/clinical variables.
Twenty (16%) patients reported complete work disability as a result of SLE after a median duration of 9 years since disease onset. A total of 46 (36.8%) patients reported difficulty in performing their daily activities, including household work, studying and leisure activities, among which 28% received social help from families or friends. Risk of work disability was strongly predicted by low education level, long disease duration and history of having pleurisy. Patients' global well-being, physical health status and functional status were factors independently associated with impaired non-labour market productivity.
SLE has a profound impact on individuals' labour and non-labour market productivity. Vocational education programmes may be useful in lowering the work disability rate in SLE. Preserving patients' physical and mental functioning or improving patients' quality of life may help in restoring both labour and non-labour productivity.
本横断面研究旨在评估系统性红斑狼疮(SLE)患者劳动力和非劳动力市场生产力的自我报告损失,并确定导致生产力损失的风险因素。
连续招募了 125 名年龄在工作范围内、被诊断为 SLE 的中国患者。通过自我报告问卷收集工作残疾、日常活动受限和获得社会帮助的情况,以及人口统计学信息和健康状况。通过临床检查和病历回顾收集疾病特征。采用单因素和多因素逻辑回归分析描述劳动力/非劳动力生产力与人口统计学/临床变量之间的关系。
20 名(16%)患者因 SLE 导致完全工作残疾,中位发病后时间为 9 年。共有 46 名(36.8%)患者报告日常活动(包括家务、学习和休闲活动)困难,其中 28%接受了家庭或朋友的社会帮助。低教育水平、疾病持续时间长和胸膜炎病史强烈预测工作残疾的风险。患者的整体健康状况、身体健康状况和功能状态是与非劳动力市场生产力受损相关的独立因素。
SLE 对个人的劳动力和非劳动力市场生产力有深远的影响。职业教育计划可能有助于降低 SLE 的残疾率。保持患者的身心功能或提高患者的生活质量可能有助于恢复劳动力和非劳动力生产力。