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加利福尼亚产前筛查计划:“选择和抉择”而非“强制和优生学”。

The California Prenatal Screening Program: "options and choices" not "coercion and eugenics".

机构信息

Prenatal Screening Branch, California Department of Public Health, Richmond, California 94804, USA.

出版信息

Genet Med. 2011 Aug;13(8):711-3. doi: 10.1097/GIM.0b013e3182272e25.

Abstract

The California Prenatal Screening Program is designed to make prenatal screening available to the state's large and diverse population. The Program provides information to women which will allow them to make informed choices regarding prenatal screening and prenatal diagnosis. Since the Program's inception in 1986, women in California have had the option to participate in prenatal screening or to decline prenatal screening. The California Program offers prenatal diagnostic services to women whose screening tests indicate an increased risk for birth defects, including Down syndrome. Women can decline any or all of these follow-up services. Genetic counseling, diagnostic services, and the presentation of diagnostic results are performed by medical professionals (not State staff) who follow established guidelines for nondirective counseling. Program data clearly demonstrate that women in California have a wide range of options and make a wide range of choices regarding prenatal screening and prenatal diagnosis. California's comprehensive Prenatal Screening Program promotes optimal care for all women within all options and choices. The important and necessary communication among organizations and stakeholders involved in prenatal screening and diagnosis, and in related care for pregnant women and for people with Down syndrome, is not served by misrepresentation and inflammatory rhetoric.

摘要

加利福尼亚州产前筛查计划旨在为该州庞大而多样化的人口提供产前筛查服务。该计划向妇女提供信息,使她们能够就产前筛查和产前诊断做出明智的选择。自 1986 年该计划启动以来,加利福尼亚州的妇女可以选择参加产前筛查或拒绝产前筛查。加利福尼亚州计划为筛查测试显示出生缺陷(包括唐氏综合征)风险增加的妇女提供产前诊断服务。妇女可以拒绝任何或所有这些后续服务。遗传咨询、诊断服务和诊断结果的呈现由遵循非指导咨询既定准则的医疗专业人员(非州工作人员)进行。计划数据清楚地表明,加利福尼亚州的妇女在产前筛查和产前诊断方面有广泛的选择,并做出了广泛的选择。加利福尼亚州全面的产前筛查计划促进了所有妇女在所有选择和选择中获得最佳护理。在产前筛查和诊断以及与孕妇和唐氏综合征患者相关的护理相关的组织和利益相关者之间进行重要和必要的沟通,不受虚假陈述和煽动性言论的影响。

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