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发展和评估针对澳籍华裔乳腺癌妇女的文化敏感性支持小组方案:一项试点研究。

Development and evaluation of a culturally sensitive support group programme for Chinese-Australian women with breast cancer: a pilot study.

机构信息

Sydney Nursing School, University of Sydney, Sydney, NSW, Australia.

出版信息

Eur J Cancer Care (Engl). 2011 Nov;20(6):795-802. doi: 10.1111/j.1365-2354.2011.01266.x. Epub 2011 Jul 19.

DOI:10.1111/j.1365-2354.2011.01266.x
PMID:21771132
Abstract

Cancer support groups are an important vehicle for providing informational and psychosocial support to cancer survivors. Studies suggest that people from minority cultures are underrepresented in cancer support groups. The aims of this study were to report the development and evaluation of a culturally sensitive support group programme for Chinese-Australian women with breast cancer and to evaluate the informational and psychosocial impact of the programme. In collaboration with a Chinese cancer support organisation, 29 women were enrolled in the programme which was evaluated by a combination of quantitative and qualitative approaches. The results indicated that the programme was well received by the participants who suggested that the content was useful and relevant. In addition, the findings indicated that the programme, designed to be culturally sensitive and linguistically appropriate, was effective in providing informational support and psychosocial support for the participants. A methodology for giving breast cancer survivors a sense of interconnectedness and thus minimising their feelings of isolation and helplessness, were also among the chief outcomes of this study. The study provided some insight into the development of supportive cancer survivorship care for women being treated for breast cancer in the Australian-Chinese community.

摘要

癌症支持小组是为癌症幸存者提供信息和心理社会支持的重要工具。研究表明,少数族裔人群在癌症支持小组中的代表性不足。本研究的目的是报告为澳大利亚华裔乳腺癌女性开发和评估一种文化敏感的支持小组计划,并评估该计划在信息和心理社会方面的影响。本研究与一家华人癌症支持组织合作,共招募了 29 名女性参加该计划,并采用定量和定性相结合的方法对其进行了评估。结果表明,该计划受到参与者的欢迎,他们认为内容有用且相关。此外,研究结果表明,该计划旨在具有文化敏感性和语言适宜性,能够为参与者提供有效的信息支持和心理社会支持。本研究的主要成果之一还包括为乳腺癌幸存者提供一种相互联系的感觉的方法,从而减少他们的孤立感和无助感。该研究为在澳大利亚华人社区中接受乳腺癌治疗的女性提供支持性癌症生存护理提供了一些见解。

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