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普拉德-威利综合征患者的护理

Care of the patient with Prader-Willi syndrome.

作者信息

Yearwood Edilma L, McCulloch Myrtle R, Tucker Michelle L, Riley Joan B

机构信息

Georgetown University School of Nursing and Health Studies, Washington, DC, USA.

出版信息

Medsurg Nurs. 2011 May-Jun;20(3):113-22.

Abstract

Prader-Willi syndrome (PWS), a complex, neurodevelopmental genetic disorder with an estimated incidence of 7 in 10,000-29,000 people, is found in all races and both genders. It is the most commonly identified genetic cause of obesity. A multidisciplinary approach to managing PWS is highlighted, along with elements that should be included in a treatment plan, to help nurses deliver comprehensive care to meet the complex biopsychosocial needs of adults with PWS.

摘要

普拉德-威利综合征(PWS)是一种复杂的神经发育性遗传疾病,估计发病率为万分之七至万分之二十九,所有种族和性别均可发病。它是肥胖最常见的已知遗传病因。文中强调了管理PWS的多学科方法,以及治疗计划应包含的要素,以帮助护士提供全面护理,满足成年PWS患者复杂的生物心理社会需求。

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