Monash Department of Clinical Epidemiology, Cabrini Hospital, Melbourne, Australia.
J Rheumatol. 2011 Aug;38(8):1791-7. doi: 10.3899/jrheum.110406.
This report summarizes the proceedings of the first Outcome Measures in Rheumatology Clinical Trials (OMERACT) Health Literacy Special Interest Group workshop at the OMERACT 10 conference. Health literacy refers to an individual's capacity to seek, understand, and use health information. Discussion centered on the relevance of health literacy to the rheumatology field; whether measures of health literacy were important in the context of clinical trials and routine care; and, if so, whether disease-specific measures were required. A nominal group process involving 27 workshop participants, comprising a patient group (n = 12) and a healthcare professional and researcher group (n = 15), confirmed that health literacy encompasses a broad range of concepts and skills that existing scales do not measure. It identified the importance and relevance of patient abilities and characteristics, but also health professional factors and broader contextual factors. Sixteen themes were identified: access to information; cognitive capacity; disease; expression/communication; finances; health professionals; health system; information; literacy/numeracy; management skills; medication; patient approach; dealing with problems; psychological characteristics; social supports; and time. Each of these was divided further into subthemes of one or more of the following: knowledge, attitude, attribute, relationship, skill, action, or context. There were virtually no musculoskeletal-specific statements, suggesting that a generic health literacy tool in rheumatology is justified. The detailed concepts across themes provided new and systematic insight into what needs to be done to improve health literacy and consequently reduce health inequalities. These data will be used to derive a more comprehensive measure of health literacy.
本报告总结了在 OMERACT10 会议上举行的第一次风湿病临床试验（OMERACT）健康素养特别兴趣小组研讨会的会议记录。健康素养是指个体寻求、理解和使用健康信息的能力。讨论集中在健康素养与风湿病领域的相关性；在临床试验和常规护理背景下，健康素养衡量标准是否重要；如果是，是否需要特定于疾病的衡量标准。一个由 27 名与会者组成的名义群体过程，包括患者组（n=12）和医疗保健专业人员和研究人员组（n=15），证实健康素养涵盖了广泛的概念和技能，现有量表无法衡量。它确定了患者能力和特征的重要性和相关性，但也确定了医疗保健专业人员因素和更广泛的背景因素的重要性和相关性。确定了 16 个主题：信息获取；认知能力；疾病；表达/沟通；财务；卫生专业人员；卫生系统；信息；读写能力/计算能力；管理技能；药物；患者方法；处理问题；心理特征；社会支持；和时间。其中每一个主题都进一步细分为以下一个或多个主题的子主题：知识、态度、属性、关系、技能、行动或背景。几乎没有针对肌肉骨骼系统的具体陈述，这表明在风湿病中使用通用健康素养工具是合理的。这些主题中的详细概念为提高健康素养并进而减少健康不平等提供了新的和系统的见解。这些数据将用于推导出更全面的健康素养衡量标准。
