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生活在矛盾中——脑膜瘤手术后女性的身体和生活世界体验。

Living in a paradox--women's experiences of body and life-world after meningioma surgery.

机构信息

Department of Neurobiology, Karolinska Institutet, Huddinge, Sweden.

出版信息

J Adv Nurs. 2012 Mar;68(3):559-68. doi: 10.1111/j.1365-2648.2011.05757.x. Epub 2011 Aug 11.

DOI:10.1111/j.1365-2648.2011.05757.x
PMID:21834839
Abstract

AIMS

The aims of the study were to describe how persons who have undergone benign meningioma surgery experience their body and life-world and to illuminate the meaning of the illness, operation and recovery.

BACKGROUND

Meningioma, which is often benign, is the most commonly diagnosed brain tumour. Studies have shown that persons with meningioma tend to be more psychologically affected than persons with other brain tumours. To our knowledge, no previous studies have focused on the life-world or body experience of these persons.

METHOD

Narrative interviews with seven women conducted over a 6-month period (2008-2009) were analyzed using a phenomenological hermeneutical method. Findings.  Four themes were identified: In between double threats: the tumour and operation: the participants seemed to perceive a paradox in the sense that the tumour was both benign and threatening and the surgery both curing and risky; the wound as an open gate: the wound is visibly healed, but perceived as unhealed; the suffering body overflows life: the participants were prevented from regaining their body, feeling fragile and oversensitive to impressions; and the need to be embraced by attention: taking the participants' needs seriously facilitated understanding of the diagnosis.

CONCLUSION

The participants in this study described emotional distress when recovering from meningioma surgery. It is essential for nurses to be aware of the various meanings people ascribe to events that disrupt their lives and the transition process in connection with meningioma treatment.

摘要

目的

本研究旨在描述接受良性脑膜瘤手术的患者如何体验他们的身体和生活世界,并阐明疾病、手术和康复的意义。

背景

脑膜瘤通常为良性,是最常见的脑肿瘤。研究表明,脑膜瘤患者比其他脑肿瘤患者更容易受到心理影响。据我们所知,以前没有研究关注过这些人的生活世界或身体体验。

方法

采用现象学解释学方法,对 2008 年至 2009 年间进行的 7 名女性的叙事访谈进行了分析。结果:确定了四个主题:双重威胁之间:肿瘤和手术:参与者似乎感知到一种悖论,即肿瘤既是良性的又是威胁性的,手术既是治愈性的又是有风险的;作为敞开大门的伤口:伤口表面愈合,但被认为未愈合;痛苦的身体溢出生命:参与者无法恢复身体,感到脆弱和对印象过于敏感;以及需要被关注所拥抱:认真对待参与者的需求有助于理解诊断。

结论

本研究中的参与者在脑膜瘤手术后的恢复过程中描述了情绪困扰。护士必须意识到,人们对生活中发生的各种事件以及与脑膜瘤治疗相关的过渡过程赋予了不同的意义。

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