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双相情感障碍和精神分裂症患者照料体验的对比研究。

Comparative study of the experience of caregiving in bipolar affective disorder and schizophrenia.

机构信息

Department of Psychiatry, Postgraduate Institute of Medical Education & Research, Chandigarh, India.

出版信息

Int J Soc Psychiatry. 2012 Nov;58(6):614-22. doi: 10.1177/0020764011419054. Epub 2011 Aug 25.

Abstract

BACKGROUND

Bipolar affective disorder and schizophrenia are disabling illnesses and place a considerable degree of burden on the caregivers. Many studies from India have measured the burden of care in schizophrenia and some studies have measured the burden experienced by the caregivers of bipolar affective disorder. Few studies have compared this variable in these disorders. Experience of caregiving is a broader concept that takes into consideration both the negative and positive appraisal of the caregiving. However, no study from India has compared the experience of caregiving in bipolar affective disorder and schizophrenia.

AIM OF THE STUDY

To study the experience of caregiving in a group of caregivers of bipolar patients and compare the same with caregivers of patients with schizophrenia.

METHOD

Seventy patients with a diagnosis of bipolar affective disorder and 70 with a diagnosis of schizophrenia were selected for the present study. Patients were assessed on the Hamilton Depression Rating Scale, the Young Mania Rating Scale and the Positive and Negative Syndrome Scale depending upon their diagnosis. They were also assessed on the Global Assessment of Functioning (GAF) scale. Caregivers of the patients were assessed on the General Health Questionnaire (GHQ) and the Experience of Caregiving Inventory (ECI).

RESULTS

The maximum ECI score was seen in the domain of handling 'difficult behaviour' in both the groups. Compared to caregivers of patients with bipolar affective disorder, caregivers of patients with schizophrenia had overall more positive and negative appraisal of caregiving experience while caring for their ill relatives. The difference reached significant levels for all domains but for the domains of 'effects on family', 'need for back-up' and 'good aspect of relationship'. There were significant differences too for the total positive personal experience sub-score. There was a significant positive correlation between the negative and positive caregiving experience score for both schizophrenia and bipolar groups.

CONCLUSION

The caregivers of both bipolar affective disorder and schizophrenia appraise the caregiving negatively, while at the same time appraising some positive aspects of it. Caregivers of schizophrenia patients appraise caregiving more negatively than those of bipolar affective disorder patients.

摘要

背景

双相情感障碍和精神分裂症是使人丧失能力的疾病,会给照顾者带来相当大的负担。许多来自印度的研究已经测量了精神分裂症照顾者的负担,一些研究已经测量了双相情感障碍照顾者所经历的负担。很少有研究比较这两种疾病的变量。照顾经验是一个更广泛的概念,它考虑了照顾的负面和积极评价。然而,印度没有研究比较双相情感障碍和精神分裂症照顾者的照顾经验。

研究目的

研究一组双相患者照顾者的照顾经验,并将其与精神分裂症患者的照顾者进行比较。

方法

本研究选择了 70 例双相情感障碍患者和 70 例精神分裂症患者。根据诊断,患者接受了汉密尔顿抑郁评定量表、杨氏躁狂评定量表和阳性与阴性症状量表的评估。他们还接受了总体功能评估(GAF)量表的评估。患者的照顾者接受了一般健康问卷(GHQ)和照顾经验量表(ECI)的评估。

结果

两组患者在处理“困难行为”方面的 ECI 得分最高。与双相情感障碍患者的照顾者相比,精神分裂症患者的照顾者在照顾患病亲属时,对照顾体验的总体评价更为积极和消极。除了“对家庭的影响”、“需要支持”和“关系的好方面”这三个方面外,所有方面的差异都达到了显著水平。总积极个人体验子量表的差异也很显著。精神分裂症和双相组的负性和正性照顾体验评分之间存在显著正相关。

结论

双相情感障碍和精神分裂症的照顾者都对照顾持负面评价,同时也对其某些积极方面持评价。精神分裂症患者的照顾者对照顾的评价比双相情感障碍患者的照顾者更消极。

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