Khatoon Khurshida, Dhamija Sana, Gupta Nishtha, Padhi Debashis, Kiran Manisha, Chaudhury Suprakash
Department of Psychiatric Social Work, RINPAS, Kanke, Jharkhand, India.
Department of Psychiatry, Dr. D. Y. Patil Medical College, Hospital and Research Center, Dr. D. Y. Patil University, Pune, Maharashtra, India.
Ind Psychiatry J. 2021 Oct;30(Suppl 1):S178-S183. doi: 10.4103/0972-6748.328811. Epub 2021 Oct 22.
The concept of burden of care came from the realm of behavioral sciences primarily in the context of looking after a psychiatrically ill person. Caregivers of schizophrenia and bipolar affective disorder (BPAD) have to take over the totality of patient care since most of these patients are treated at home. As a result of this, they are exposed to negative consequences of caregiving.
This study aims to assess and compare the pattern of burden among the families having patients with schizophrenia and bipolar disorder.
This cross-sectional, observational study was conducted on the outpatient department level at Ranchi Institute of Neuropsychiatry and Allied Science. This study included 30 patients with schizophrenia and equal number of age- and sex-matched patients with bipolar disorder. The diagnosis was made as per criteria of International Classification of Diseases 10 diagnostic criteria for research. Their caregivers who gave consent for their participation in the study and satisfy the inclusion and exclusion criteria were included in the study by purposive sampling. Tools administered were socio-demographic datasheet and family burden inventory schedule.
Chi-square test, Fisher's exact test, and Mann-Whitney U test.
Total caregiver burden, financial burden, disruption of routine family activities, family leisure, family interaction, and subjective burden felt by caregiver were significantly more in caregivers of schizophrenia patients compared to caregivers of BPAD. There was no significant difference in the two areas of burden, i.e., effect on physical health of the caregivers and effect on mental health of caregivers.
Caregivers of schizophrenia patients have significantly higher family burden as compared to caregivers of subjects with BPAD.
照护负担的概念主要源于行为科学领域,主要是在照顾精神病患者的背景下。精神分裂症和双相情感障碍(BPAD)患者的照护者必须承担患者护理的全部工作,因为这些患者大多在家接受治疗。因此,他们面临着照护的负面后果。
本研究旨在评估和比较精神分裂症患者家庭和双相情感障碍患者家庭的负担模式。
本横断面观察性研究在兰契神经精神病学及相关科学研究所的门诊部进行。本研究纳入了30例精神分裂症患者以及数量相等的年龄和性别匹配的双相情感障碍患者。诊断依据国际疾病分类第10版研究用诊断标准进行。通过立意抽样,将同意参与研究且符合纳入和排除标准的患者照护者纳入研究。所使用的工具包括社会人口数据表和家庭负担量表。
卡方检验、费舍尔精确检验和曼-惠特尼U检验。
与双相情感障碍患者的照护者相比,精神分裂症患者的照护者在总照护负担、经济负担、日常家庭活动中断、家庭休闲、家庭互动以及照护者感受到的主观负担方面明显更重。在两个负担领域,即对照护者身体健康的影响和对照护者心理健康的影响方面,没有显著差异。
与双相情感障碍患者的照护者相比,精神分裂症患者的照护者家庭负担明显更高。