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帕金森病患者丘脑底核手术对交流感知变化的影响:一项定性访谈研究。

Perceived Changes in Communication as an Effect of STN Surgery in Parkinson's Disease: A Qualitative Interview Study.

机构信息

Division of Speech and Language Pathology, Institute of Neuroscience and Physiology, Sahlgrenska Academy, the University of Gothenburg, 405 30 Göteborg, Sweden.

出版信息

Parkinsons Dis. 2011;2011:540158. doi: 10.4061/2011/540158. Epub 2011 Aug 14.

DOI:10.4061/2011/540158
PMID:21876840
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3159130/
Abstract

The aim of the present study was to explore four individuals' perspective of the way their speech and communication changed as a result of subthalamic nucleus deep brain stimulation treatment for Parkinson's disease. Interviews of two men and two women were analyzed using qualitative content analysis. Three themes emerged as a result of the analysis. The first theme included sub-themes describing both increased and unexpected communication difficulties such as a more vulnerable speech function, re-emerging stuttering and cognitive difficulties affecting communication. The second theme comprised strategies to improve communication, using different speech techniques and communicative support, as well as trying to achieve changes in medical and stimulation parameters. The third theme included descriptions of mixed feelings surrounding the surgery. Participants described the surgery as an unavoidable dramatic change, associated both with improved quality of life but also uncertainty and lack of information, particularly regarding speech and communication changes. Despite negative effects on speech, the individuals were generally very pleased with the surgical outcome. More information before surgery regarding possible side effects on speech, meeting with a previously treated patient and possibly voice and speech therapy before or after surgery are suggested to facilitate the adjustment to the new speech conditions.

摘要

本研究旨在探讨四名患者在接受丘脑底核深部脑刺激治疗帕金森病后,言语和交流方式变化的个人观点。对两名男性和两名女性的访谈进行了定性内容分析。分析结果产生了三个主题。第一个主题包括描述言语功能更脆弱、重新出现口吃和认知困难影响交流等增加和意外的沟通困难的子主题。第二个主题包括改善沟通的策略,使用不同的言语技巧和交流支持,以及尝试改变医疗和刺激参数。第三个主题包括对手术的复杂感受的描述。参与者将手术描述为一种不可避免的戏剧性变化,既改善了生活质量,也带来了不确定性和信息缺乏,特别是关于言语和交流变化的信息。尽管对言语有负面影响,但这些个体通常对手术结果非常满意。建议在手术前提供更多关于言语可能产生的副作用的信息,与之前接受过治疗的患者会面,并可能在手术前后进行语音和言语治疗,以帮助适应新的言语条件。

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