Manchester Childrens Hospital, Manchester, UK.
Nephron Clin Pract. 2011;119 Suppl 2:c225-37. doi: 10.1159/000331780. Epub 2011 Aug 26.
The British Association for Paediatric Nephrology Registry was established fifteen years ago to analyse data related to renal replacement therapy for children. The registry receives data from the 13 paediatric nephrology centres in the UK. In 2008 the registry was relocated to the UK Renal Registry (UKRR).
To provide centre specific data so that individual centres can reflect on the contribution that their data makes to the national picture and to determine the extent to which their patient parameters meet nationally agreed audit standards for the management of children with established renal failure.
Data were submitted by either paper or electronic returns. Data were analysed to calculate summary statistics and where applicable the percentage achieving an audit standard. The standards used were those set out by the Renal Association and the National Institute for Health and Clinical Excellence.
Data were received from all but one centre. Anthropometric data confirmed that children with established renal failure (ERF) in the UK are short compared with their peers with no change in recent trends. In the UK as a whole, the control of blood pressure, anaemia and bone biochemistry is suboptimal.
Key features of this report are the provision of centre specific data and comparison of data to audit standards. It is hoped that this information will provide a basis for discussion and a stimulus to improve the care of children with ERF.
英国儿科肾脏病学会注册处成立于十五年前，旨在分析与儿童肾脏替代治疗相关的数据。该注册处从英国的 13 个儿科肾脏病中心接收数据。2008 年，该注册处迁至英国肾脏注册处（UKRR）。
提供特定中心的数据，以便各中心能够反思其数据对全国情况的贡献，并确定其患者参数在多大程度上符合国家商定的关于管理已确立肾衰竭儿童的审计标准。
数据通过纸质或电子报告提交。对数据进行分析以计算汇总统计数据，并在适用的情况下计算达到审计标准的百分比。使用的标准是肾脏协会和国家卫生与临床优化研究所制定的标准。
除一个中心外，所有中心均收到数据。人体测量数据证实，英国患有终末期肾衰竭（ERF）的儿童与同龄儿童相比身材矮小，且最近趋势没有变化。在英国整体范围内，血压、贫血和骨生化的控制不理想。
本报告的主要特点是提供特定中心的数据，并将数据与审计标准进行比较。希望这些信息将为讨论提供基础，并激发改善 ERF 儿童护理的动力。
