University of Oklahoma College of Nursing, Oklahoma City, OK, USA.
J Pediatr Nurs. 2011 Dec;26(6):e29-36. doi: 10.1016/j.pedn.2010.10.005. Epub 2010 Dec 24.
Rearing a child with a chronic illness is stressful and can potentially affect parenting style, which may result in poorer outcomes for children. The purpose of this study was to compare parenting characteristics of female caregivers rearing children with a disorder of sex development (DSD) to female caregivers rearing children with type 1 diabetes mellitus (T1DM). Caregivers of both groups were matched according to age and compared on measures of stress and parenting practices. Both groups demonstrated significant levels of stress and negative parenting practices. Children with T1DM and male children with non-life-threatening DSD were perceived as more vulnerable by their caregivers. Better understanding of parenting experiences of female caregivers rearing children with DSD, particularly male children, will facilitate the development of individualized interventions to ameliorate negative parenting practices and stress, with the long-term goal of improved health outcomes for their children.
养育患有慢性疾病的孩子会带来压力,并且可能会影响育儿方式,从而对孩子的结果产生不利影响。本研究的目的是比较养育患有性发育障碍(DSD)的孩子的女性照顾者和养育 1 型糖尿病(T1DM)的孩子的女性照顾者的育儿特征。根据年龄对两组照顾者进行匹配,并比较其压力和育儿实践措施。两组均显示出显著的压力和消极的育儿实践。T1DM 患儿和非危及生命的 DSD 男性患儿被其照顾者认为更脆弱。更好地了解养育患有 DSD 儿童的女性照顾者的育儿经验,特别是男性儿童的育儿经验,将有助于制定个性化干预措施来改善消极的育儿实践和压力,最终目标是改善其孩子的健康结果。