Hardonk Stefan, Daniels Sarah, Desnerck Greetje, Loots Gerrit, Van Hove Geert, Van Kerschaver Erwin, Sigurjónsdóttir Hanna Björg, Vanroelen Christophe, Louckx Fred
Department of Medical Sociology, Vrije Universiteit Brussel, Brussels, Belgium. ,
Am Ann Deaf. 2011 Summer;156(3):290-304. doi: 10.1353/aad.2011.0027.
The study examined factors in deaf parents' decision between cochlear implantation (CI) and traditional hearing aids for their child. The subjects were 6 Flemish children ages 5-9 years with severe/profound congenital hearing loss, with at least 1 deaf parent. The researchers, who conducted thematic content analysis of qualitative data collected through parent interviews, found that with the exception of a family with 1 hearing parent, parents gave priority to Deaf identity, sign language, and ethical issues in deciding between CI and hearing aids. Medical risks were also mentioned. The researchers conclude that the decision-making processes of the parents involved factors that have also been found among hearing parents, as well as aspects that have not been reported to play a role in hearing parents' decision making. A further conclusion is that deaf parents' perspective merits attention in professional practice and empirical research.
该研究调查了聋人父母在为孩子选择人工耳蜗植入(CI)和传统助听器时的决策因素。研究对象为6名年龄在5至9岁之间、患有重度/极重度先天性听力损失且至少有1名聋人父母的佛兰芒儿童。研究人员通过对家长访谈收集的定性数据进行主题内容分析后发现,除了一个有1名听力正常父母的家庭外,父母在决定选择人工耳蜗植入还是助听器时,优先考虑聋人身份、手语和伦理问题。他们还提到了医疗风险。研究人员得出结论,父母的决策过程涉及到在听力正常的父母中也发现的因素,以及尚未报道在听力正常的父母决策中起作用的方面。进一步的结论是,聋人父母的观点在专业实践和实证研究中值得关注。