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聋人父母与儿童人工耳蜗植入:决策过程的探索

Deaf parents and pediatric cochlear implantation: an exploration of the decision-making process.

作者信息

Hardonk Stefan, Daniels Sarah, Desnerck Greetje, Loots Gerrit, Van Hove Geert, Van Kerschaver Erwin, Sigurjónsdóttir Hanna Björg, Vanroelen Christophe, Louckx Fred

机构信息

Department of Medical Sociology, Vrije Universiteit Brussel, Brussels, Belgium. ,

出版信息

Am Ann Deaf. 2011 Summer;156(3):290-304. doi: 10.1353/aad.2011.0027.

DOI:10.1353/aad.2011.0027
PMID:21941879
Abstract

The study examined factors in deaf parents' decision between cochlear implantation (CI) and traditional hearing aids for their child. The subjects were 6 Flemish children ages 5-9 years with severe/profound congenital hearing loss, with at least 1 deaf parent. The researchers, who conducted thematic content analysis of qualitative data collected through parent interviews, found that with the exception of a family with 1 hearing parent, parents gave priority to Deaf identity, sign language, and ethical issues in deciding between CI and hearing aids. Medical risks were also mentioned. The researchers conclude that the decision-making processes of the parents involved factors that have also been found among hearing parents, as well as aspects that have not been reported to play a role in hearing parents' decision making. A further conclusion is that deaf parents' perspective merits attention in professional practice and empirical research.

摘要

该研究调查了聋人父母在为孩子选择人工耳蜗植入(CI)和传统助听器时的决策因素。研究对象为6名年龄在5至9岁之间、患有重度/极重度先天性听力损失且至少有1名聋人父母的佛兰芒儿童。研究人员通过对家长访谈收集的定性数据进行主题内容分析后发现,除了一个有1名听力正常父母的家庭外,父母在决定选择人工耳蜗植入还是助听器时,优先考虑聋人身份、手语和伦理问题。他们还提到了医疗风险。研究人员得出结论,父母的决策过程涉及到在听力正常的父母中也发现的因素,以及尚未报道在听力正常的父母决策中起作用的方面。进一步的结论是,聋人父母的观点在专业实践和实证研究中值得关注。

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BMC Med Ethics. 2023 Aug 28;24(1):68. doi: 10.1186/s12910-023-00945-6.
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Patient Preferences for Long-Term Implant Care in Cochlear, Glaucoma and Cardiovascular Diseases.患者对耳蜗、青光眼和心血管疾病长期植入物护理的偏好。
Int J Environ Res Public Health. 2023 Jul 13;20(14):6358. doi: 10.3390/ijerph20146358.
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Deaf Identity Under Pressure: Experiences of Deaf Persons in Iceland.
聋人身份的压力:冰岛聋人的经历。
J Deaf Stud Deaf Educ. 2023 Mar 24;28(2):235-245. doi: 10.1093/deafed/enac049.
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Cochlear Implantation, Enhancements, Transhumanism and Posthumanism: Some Human Questions.人工耳蜗植入、增强、超人类主义与后人类主义:一些关于人类的问题。
Sci Eng Ethics. 2016 Feb;22(1):67-92. doi: 10.1007/s11948-015-9640-6. Epub 2015 May 12.
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"Part of our world": Influences on caregiver decisions about communication choices for children with hearing loss.“我们世界的一部分”:对照顾者关于听力损失儿童沟通选择决策的影响
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