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小儿人工耳蜗植入:对比利时弗拉芒地区父母决策过程的定性研究。

Pediatric cochlear implantation: a qualitative study of parental decision-making processes in Flanders, Belgium.

作者信息

Hardonk Stefan, Bosteels Sigrid, Desnerck Greetje, Loots Gerrit, Van Hove Geert, Van Kerschaver Erwin, Vanroelen Christophe, Louckx Fred

机构信息

Department of Medical Sociology, Vrije Universiteit Brussel, Brussels, Belgium.

出版信息

Am Ann Deaf. 2010 Summer;155(3):339-52. doi: 10.1353/aad.2010.0012.

DOI:10.1353/aad.2010.0012
PMID:21138046
Abstract

Factors contributing to parents' decision when they choose between cochlear implantation (CI) and traditional hearing aids for their child were examined. The subjects were children with severe/profound hearing loss, born 1999-2001, registered in the universal neonatal hearing screening program in the Flanders region of Belgium. Qualitative data collected retrospectively from parents were subjected to thematic content analysis. In their responses to professional advice, parents were segmented into 3 groups: (a) those whose primary considerations were the importance of oral language development and the relative potential of CI and traditional hearing aids; (b) those for whom alternative factors (e.g., medical risks, ethical issues) were paramount, even in the face of professional advocacy of CI; (c) those who followed professional advice against CI. The researchers conclude that care professionals should be sensitive to the impact of their advice and other factors in parental decision making.

摘要

研究了影响父母在为孩子选择人工耳蜗植入(CI)和传统助听器时做出决策的因素。研究对象为1999年至2001年出生、在比利时弗拉芒地区的新生儿听力普遍筛查项目中登记的重度/极重度听力损失儿童。从父母那里回顾性收集的定性数据进行了主题内容分析。在对专业建议的回应中,父母被分为3组:(a)主要考虑口语发展的重要性以及人工耳蜗植入和传统助听器的相对潜力的父母;(b)即使面对专业人士对人工耳蜗植入的支持,也将其他因素(如医疗风险、伦理问题)视为首要因素的父母;(c)听从专业建议反对人工耳蜗植入的父母。研究人员得出结论,护理专业人员应该意识到他们的建议以及其他因素对父母决策的影响。

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Am Ann Deaf. 2010 Summer;155(3):339-52. doi: 10.1353/aad.2010.0012.
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引用本文的文献

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Parental Decision-Making and Deaf Children: A Systematic Literature Review.父母决策与失聪儿童:一项系统文献综述
J Deaf Stud Deaf Educ. 2018 Oct 1;23(4):295-306. doi: 10.1093/deafed/eny019.
2
"Part of our world": Influences on caregiver decisions about communication choices for children with hearing loss.“我们世界的一部分”:对照顾者关于听力损失儿童沟通选择决策的影响
Deafness Educ Int. 2014 Jun;16(2):61-85. doi: 10.1179/1557069X13Y.0000000026.
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Cochlear Implant: the complexity involved in the decision making process by the family.
人工耳蜗植入:家庭决策过程中涉及的复杂性。
Rev Lat Am Enfermagem. 2014 May-Jun;22(3):415-24. doi: 10.1590/0104-1169.3044.2432.
4
Bioethics and medical/legal considerations on cochlear implants in children.儿童人工耳蜗植入的伦理和医学法律问题
Braz J Otorhinolaryngol. 2012 Jun;78(3):70-9. doi: 10.1590/S1808-86942012000300013.