Faculty of Medicine and Health Sciences, Department of Movement and Sports Sciences, Ghent University, Ghent, Belgium.
Psychooncology. 2013 Jan;22(1):125-32. doi: 10.1002/pon.2069. Epub 2011 Sep 29.
This study examines the care needs of rehabilitating breast cancer survivors and determines what sociodemographic and medical characteristics are associated with these care needs.
A large-scale cross-sectional study (n = 465, response rate = 65%) was conducted among survivors who had ended primary treatment less than 6 months previously. Questionnaires were completed regarding participants' care needs, how these needs were met and the time and manner preferred for receiving information and support. Care needs regarding seven specific rehabilitation topics were assessed separately: (1) physical functioning, (2) psychological functioning, (3) self and body image, (4) sexuality, (5) relationship with partner, (6) relationship with others, and (7) work, return to work and social security.
High unmet needs were reported across all topics. The time preferred for receiving information and support across most topics was the period of breast cancer treatment. The most popular sources of information and support were informative brochures, consultation with a psychologist, information sessions and an informative website. Younger age and lower income were associated with care needs after treatment.
A valuable contribution is made to the literature on post-treatment care needs by comprehensively mapping unmet needs and the preferred time and source for meeting those needs. This study leads to greater awareness of the struggle facing breast cancer survivors and should guide those developing post-treatment interventions. As optimal tailoring to the needs of the target group is a prerequisite for success, preparatory needs assessment should be essential to the development of supportive interventions.
本研究调查了康复期乳腺癌幸存者的护理需求，并确定了哪些社会人口学和医学特征与这些护理需求相关。
对最近结束初级治疗不到 6 个月的幸存者进行了一项大规模的横断面研究（n=465，响应率=65%）。参与者完成了关于他们的护理需求、这些需求如何得到满足以及他们希望何时以何种方式获得信息和支持的问卷。分别评估了七个特定康复主题的护理需求：（1）身体功能，（2）心理功能，（3）自我和身体形象，（4）性行为，（5）与伴侣的关系，（6）与他人的关系，以及（7）工作、重返工作岗位和社会保障。
所有主题的未满足需求均较高。大多数主题都希望在乳腺癌治疗期间获得信息和支持。最受欢迎的信息和支持来源是信息手册、与心理学家的咨询、信息会议和信息网站。年龄较小和收入较低与治疗后护理需求相关。
本研究全面描绘了治疗后护理需求以及满足这些需求的最佳时间和来源，为治疗后护理需求的文献做出了有价值的贡献。本研究使人们更加了解乳腺癌幸存者所面临的困境，应指导那些制定治疗后干预措施的人。由于针对目标群体的需求进行最佳定制是成功的前提，因此预备性需求评估对于支持性干预措施的开发至关重要。
