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将麻风病残疾护理工作移交给患者和社区成员。

Transfer of disability care of leprosy to the affected persons and the community members.

作者信息

Porichha D, Rao V N, Samal P, Rao A K

机构信息

Regional Office, LEPRA India, Bhubaneswar-751015, Orissa, India.

出版信息

Indian J Lepr. 2011 Apr-Jun;83(2):81-6.

PMID:21972660
Abstract

Bargarh district in the western Orissa had high leprosy burden and LEPRA India supported in control activities. Its main focus was on POD care with community participation. After motivation and capacity building, it transferred the responsibility of POD care to affected persons, family, community partners and GHS staff in 2006. The effectiveness of this approach was evaluated in 2009. With personal contact responses from 112 (17%) persons with disability and 18 stakeholders were obtained. Result shows 98% affected persons are staying with family; 92% are practicing self-care; 92% felt self-care is beneficial; 57% and 36% are using commercial and MCR footwear respectively. Surgical correction of deformity is maintained in 80% of cases. Difficulty in activity and in community participation was experienced in about one third of affected persons the latter is mostly due to self stigma. The facilitators were happy with their beneficiaries.

摘要

奥里萨邦西部的巴尔加尔区麻风病负担沉重,印度麻风病防治协会在当地支持开展防治活动。其主要重点是在社区参与下提供残疾预防和康复护理。经过动员和能力建设后,该协会于2006年将残疾预防和康复护理的责任移交给了患者、家庭、社区伙伴和综合卫生服务中心的工作人员。2009年对这一方法的有效性进行了评估。通过个人联系,获得了112名(17%)残疾人以及18名利益相关者的反馈。结果显示,98%的患者与家人住在一起;92%的患者进行自我护理;92%的患者认为自我护理有益;57%和36%的患者分别使用商业性和麻风病防治协会提供的鞋具。80%的病例维持了畸形的外科矫正。约三分之一的患者在活动和社区参与方面存在困难,后者主要是由于自我污名化。协助者对他们的受益者感到满意。

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