Commentary: Save the children: direct-to-consumer testing of children is premature, even for research.
作者信息
Patenaude Andrea Farkas
机构信息
Center for Cancer Genetics Director of Psychology, Research and Clinical Services, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, 450 Brookline Avenue, Boston, MA 02215, USA.
出版信息
J Pediatr Psychol. 2011 Nov-Dec;36(10):1122-7; discussion 1128-9. doi: 10.1093/jpepsy/jsr068. Epub 2011 Oct 12.
PMID:21994422
Abstract
摘要
相似文献
1
Commentary: Save the children: direct-to-consumer testing of children is premature, even for research.
J Pediatr Psychol. 2011 Nov-Dec;36(10):1122-7; discussion 1128-9. doi: 10.1093/jpepsy/jsr068. Epub 2011 Oct 12.
2
Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
J Pediatr Psychol. 2011 Nov-Dec;36(10):1113-21. doi: 10.1093/jpepsy/jsr040. Epub 2011 Aug 4.
3
The ethics of research with children.
Nurse Res. 2002;10(2):7-19. doi: 10.7748/nr2003.01.10.2.7.c5885.
4
Open house: the ethics of studying children at home.
Environ Health Perspect. 2006 Mar;114(3):A168-70. doi: 10.1289/ehp.114-a168.
5
Genetic screening of children: The U.K. position.
J Contemp Health Law Policy. 1995 Fall;12(1):113-30.
6
Direct-to-consumer genomics and research ethics: should a more robust informed consent process be included?
Am J Bioeth. 2009;9(6-7):56-8. doi: 10.1080/15265160902893965.
7
The role of the staff nurse in protecting children and families involved in research.
J Pediatr Nurs. 2004 Aug;19(4):311-3. doi: 10.1016/j.pedn.2004.07.003.
8
An exploration of ethical issues in research in children's health and the environment.
Environ Health Perspect. 2006 Oct;114(10):1603-8. doi: 10.1289/ehp.9000.
9
What do research ethics committees say about applications to conduct research involving children?
Arch Dis Child. 2010 Nov;95(11):915-7. doi: 10.1136/adc.2009.172395. Epub 2010 Jun 23.
10
Child research in South Africa: How do the new regulations help?
S Afr Med J. 2015 Nov;105(11):899-900. doi: 10.7196/SAMJ.2015.v105i11.9838.
引用本文的文献
1
Bridging the Communication Divide: A Role for Health Psychology in the Genomic Era.
Prof Psychol Res Pr. 2012 Dec;43(6):568-575. doi: 10.1037/a0028971.
Zotero 插件